Pain levels and associated factors in the Scleroderma Patient-centered Intervention Network (SPIN) cohort: a multicentre cross-sectional study

YC Lee, RS Fox, L Kwakkenbos, B Levis… - The Lancet …, 2021 - thelancet.com
Background Pain is an important and detrimental feature of systemic sclerosis but is often
overlooked or deprioritised in research and clinical care. Raynaud's phenomenon, arthritis …

Oral health in systemic sclerosis: A scoping review

M Gagarine, M Cañedo-Ayala, V Cook… - … of Scleroderma and …, 2024 - journals.sagepub.com
Background: Limited research on oral health in systematic sclerosis poses a significant
challenge for people with systematic sclerosis and health care professionals. We conducted …

Identifying unmet needs in SSc-ILD by semi-qualitative in-depth interviews

AM Hoffmann-Vold, E Bendstrup, T Dimitroulas… - …, 2021 - academic.oup.com
Objectives Interstitial lung disease is frequent in SSc (SSc-ILD) and associates with
significantly reduced quality of life. Here we aimed to analyse patient pathways, and …

Protocol for the development of a tool to map systemic sclerosis pain sources, patterns, and management experiences: a Scleroderma Patient-centered Intervention …

T Dal Santo, M Golberg, EL Nassar, ME Carrier, S Hu… - BMC rheumatology, 2024 - Springer
Abstract Introduction Systemic sclerosis (SSc) is a rare, complex autoimmune rheumatic
disease with multiple factors that contribute to pain. People with SSc emphasize the effect …