Ethical problems in decision making in the neonatal ICU

JD Lantos - New England Journal of Medicine, 2018 - Mass Medical Soc
Ethical Issues in the Neonatal ICU Technological advances have altered the boundary
between viable and nonviable newborns and increased the need to consider quality of life in …

Communication with parents concerning withholding or withdrawing of life-sustaining interventions in neonatology

A Janvier, K Barrington, B Farlow - Seminars in perinatology, 2014 - Elsevier
The nature and content of the conversations between the healthcare team and the parents
concerning withholding or withdrawing of life-sustaining interventions for neonates vary …

The experience of families with children with trisomy 13 and 18 in social networks

A Janvier, B Farlow, BS Wilfond - Pediatrics, 2012 - publications.aap.org
BACKGROUND: Children with trisomy 13 and trisomy 18 (T13-18) have low survival rates
and survivors have significant disabilities. For these reasons, interventions are generally not …

Supporting parent caregivers of children with life-limiting illness

KD Koch, BL Jones - Children, 2018 - mdpi.com
The well-being of parents is essential to the well-being of children with life-limiting illness.
Parents are vulnerable to a range of negative financial, physical, and psychosocial issues …

How parents of children receiving pediatric palliative care use religion, spirituality, or life philosophy in tough times

KR Hexem, CJ Mollen, K Carroll… - Journal of palliative …, 2011 - liebertpub.com
Background: How parents of children with life threatening conditions draw upon religion,
spirituality, or life philosophy is not empirically well described. Methods: Participants were …

Postponed withholding: Balanced decision-making at the margins of viability

J Syltern, L Ursin, B Solberg, R Støen - The American Journal of …, 2022 - Taylor & Francis
Advances in neonatology have led to improved survival for periviable infants. Immaturity still
carries a high risk of short-and long-term harms, and uncertainty turns provision of life …

Wide variation in severe neonatal morbidity among very preterm infants in European regions

AKE Bonamy, J Zeitlin, A Piedvache, RF Maier… - Archives of Disease in …, 2019 - fn.bmj.com
Objective To investigate the variation in severe neonatal morbidity among very preterm
(VPT) infants across European regions and whether morbidity rates are higher in regions …

Predictors of Death or Severe Impairment in Neonates With Hypoxic-Ischemic Encephalopathy

HC Glass, TR Wood, BA Comstock, AL Numis… - JAMA Network …, 2024 - jamanetwork.com
Importance Outcomes after hypoxic-ischemic encephalopathy (HIE) are variable. Predicting
death or severe neurodevelopmental impairment (NDI) in affected neonates is crucial for …

Ethics of end of life decisions in pediatrics: a narrative review of the roles of caregivers, shared decision-making, and patient centered values

JD Santoro, M Bennett - Behavioral Sciences, 2018 - mdpi.com
Background: This manuscript reviews unique aspects of end of life decision-making in
pediatrics. Methods: A narrative literature review of pediatric end of life issues was …

Parental perspectives regarding outcomes of very preterm infants: toward a balanced approach

M Jaworski, A Janvier, F Lefebvre, TM Luu - The Journal of pediatrics, 2018 - Elsevier
Objectives To explore parental perspectives regarding their preterm child at 18 months
corrected age and to investigate whether reported answers correlate with level of …