How HCI bridges health and design in online health communities: a systematic review

D Gatos, A Günay, G Kırlangıç, K Kuscu… - Proceedings of the 2021 …, 2021 - dl.acm.org
This paper presents a systematic review of online health communities (OHCs) published
between 2009 and 2020 in the ACM Digital Library. Aiming to consolidate the current issues …

Logging on, reaching out, and getting by: A review of self-reported Psychosocial impacts of online peer support for people impacted by cancer

KR Allison, P Patterson, D Guilbert, M Noke… - Proceedings of the …, 2021 - dl.acm.org
For individuals impacted by their own or a family member's cancer, connecting with other
people in similar situations can be an invaluable source of informational and emotional …

" Coming Out Okay" Community Narratives for LGBTQ Identity Recovery Work

B Dym, JR Brubaker, C Fiesler, B Semaan - Proceedings of the ACM on …, 2019 - dl.acm.org
Online communities provide support for those who are vulnerable, such as LGBTQ people
while coming out. Research shows that social support and personal narrative construction …

The channel matters: Self-disclosure, reciprocity and social support in online cancer support groups

D Yang, Z Yao, J Seering, R Kraut - … of the 2019 chi conference on …, 2019 - dl.acm.org
People with health concerns go to online health support groups to obtain help and advice.
To do so, they frequently disclose personal details, many times in public. Although research …

Social media as social transition machinery

O Haimson - Proceedings of the ACM on Human-Computer …, 2018 - dl.acm.org
Social media, and people's online self-presentations and social networks, add complexity to
people's experiences managing changing identities during life transitions. I use gender …

MindfulDiary: Harnessing Large Language Model to Support Psychiatric Patients' Journaling

T Kim, S Bae, HA Kim, S Lee, H Hong, C Yang… - Proceedings of the CHI …, 2024 - dl.acm.org
Large Language Models (LLMs) offer promising opportunities in mental health domains,
although their inherent complexity and low controllability elicit concern regarding their …

Collaborative identity decolonization as reclaiming narrative agency: Identity work of Bengali communities on Quora

D Das, B Semaan - Proceedings of the 2022 CHI Conference on Human …, 2022 - dl.acm.org
While people's identities can be marginalized through various forces, colonialism is one of
the primary ways that continues to influence people's lives and identities. Colonialism refers …

" It's a lonely disease": Cultivating Online Spaces for Social Support among People Living with Dementia and Dementia Caregivers

J Johnson, V Arnold, AM Piper, GR Hayes - Proceedings of the ACM on …, 2022 - dl.acm.org
People living with dementia as well as dementia caregivers are finding new ways to provide
and receive support online. The emerging use of social media platforms-such as TikTok …

Narrative paths and negotiation of power in birth stories

M Antoniak, D Mimno, K Levy - Proceedings of the ACM on Human …, 2019 - dl.acm.org
Birth stories have become increasingly common on the internet, but they have received little
attention as a computational dataset. These unsolicited, publicly posted stories provide rich …

What is spiritual support and how might it impact the design of online communities?

CE Smith, A Kaur, KZ Gach, L Terveen… - Proceedings of the …, 2021 - dl.acm.org
Spirituality is an understudied topic in social computing; however, for Online Health
Community (OHC) users facing life-threatening illness, it is of fundamental importance …