Background Myelomeningocele (MMC) is the most common and severe form of spina bifida
and imposes a significant burden on patients and the healthcare system. Recently, the …

Importance Health literacy has been shown to play an important role in transitions of care in
adult populations, with low health literacy associated with adverse health outcomes. The …

Objective To determine feasibility of using the interactive Mobile Health and Rehabilitation
(iMHere) system in spina bifida and its effects on psychosocial and medical outcomes …

Urinary tract infection (UTI) is a source of morbidity and healthcare costs in adults with spina
bifida (ASB). UTI prevention strategies are often recommended, but the evidence of various …

Objective To examine the risk of any and specific potentially preventable hospitalizations
(PPHs) for adults with cerebral palsy (CP) or spina bifida (SB). We hypothesize that PPH risk …

PURPOSE: To increase knowledge about pain and general health in adults with
myelomeningocele, a health condition with several risk factors for pain such as …

Objective To determine whether an evidence-based wellness program for individuals with
spina bifida and spinal cord injury would improve health outcomes and patient experience of …

Objective To identify factors associated with overtreatment of presumed urinary tract
infection (UTI) among children with spina bifida using such criteria. Study design A …

In this investigational cross-sectional study, we explored the relationships among caregiver
burden, depressive symptoms, spirituality, and quality of life (QOL) in 58 parental caregivers …

Summary Background Children with Spina Bifida (SB) have considerable healthcare
utilization, including Emergency Department use (EDU). We aimed to elicit reasons for EDU …