Brain-computer interfaces for communication

MJ Vansteensel, B Jarosiewicz - Handbook of clinical neurology, 2020 - Elsevier
Locked-in syndrome (LIS) is characterized by an inability to move or speak in the presence
of intact cognition and can be caused by brainstem trauma or neuromuscular disease …

Factors influencing decisions people with motor neuron disease make about gastrostomy placement and ventilation: A qualitative evidence synthesis

S White, A O'Cathain, V Halliday, L Croot… - Health …, 2023 - Wiley Online Library
Background People with motor neuron disease (pwMND) are routinely offered gastrostomy
feeding tube placement and (non‐invasive and invasive) ventilation to manage the …

Effects of non-invasive ventilation on objective sleep and nocturnal respiration in patients with amyotrophic lateral sclerosis

M Boentert, I Brenscheidt, C Glatz, P Young - Journal of neurology, 2015 - Springer
In amyotrophic lateral sclerosis (ALS), non-invasive ventilation (NIV) is indicated if sleep-
disordered breathing (SDB), daytime hypercapnia, or significant diaphragmatic weakness is …

A sociology of impairment

M Sherry - Disability & Society, 2016 - Taylor & Francis
Impairment has a ubiquitous and troublesome position within disability studies. The absence
of an effective theoretical understanding of impairment has been a major problem for the …

The optimisation of noninvasive ventilation in amyotrophic lateral sclerosis: a systematic review

D O'Brien, T Stavroulakis, S Baxter… - European …, 2019 - Eur Respiratory Soc
Background Noninvasive ventilation (NIV) prolongs survival and quality of life in
amyotrophic lateral sclerosis (ALS); however, its benefits depend upon the optimisation of …

Health care professionals' views on psychological factors affecting nutritional behaviour in people with motor neuron disease: a thematic analysis

N Zarotti, E Coates, A McGeachan… - British Journal of …, 2019 - Wiley Online Library
Motor neuron disease (MND), also known as amyotrophic lateral sclerosis, is a
neurodegenerative disorder that causes progressive muscle paralysis and typically leads to …

Reflecting the transition from pain management services to chronic pain support group attendance: An interpretative phenomenological analysis

KA Finlay, J Elander - British Journal of Health Psychology, 2016 - Wiley Online Library
Objectives Transitioning from clinical care to community‐based self‐management
represents a significant challenge, throughout which social support can facilitate health …

The wish to die and hastening death in amyotrophic lateral sclerosis: a scoping review

A Erdmann, C Spoden, I Hirschberg… - BMJ Supportive & …, 2021 - spcare.bmj.com
Background Amyotrophic lateral sclerosis (ALS) develops into a life-threatening condition 2
to 4 years after the onset of symptoms. Although many people with the disease decide in …

[HTML][HTML] Experiences of noninvasive ventilation in adults with hypercapnic respiratory failure: a review of evidence

H Ngandu, N Gale, JB Hopkinson - European Respiratory …, 2016 - Eur Respiratory Soc
Noninvasive ventilation (NIV) has been shown to be beneficial for patients with respiratory
failure; however, many patients fail to tolerate it and require other interventions. The …

Home-based adaptation to night-time non-invasive ventilation in patients with amyotrophic lateral sclerosis: a randomized controlled trial

E Volpato, M Vitacca, L Ptacinsky, A Lax… - Journal of Clinical …, 2022 - mdpi.com
Background: Initiation to Non-Invasive Ventilation (NIV) in amyotrophic lateral sclerosis
(ALS) can be implemented in an inpatient or outpatient setting. Aims: We aimed to evaluate …