[HTML][HTML] Data Management in Biobanking: Strategies, Challenges, and Future Directions

R Alkhatib, KI Gaede - BioTech, 2024 - mdpi.com
Biobanking plays a pivotal role in biomedical research by providing standardized
processing, precise storing, and management of biological sample collections along with the …

Talking ethics early in health data public private partnerships

C Landers, KE Ormond, A Blasimme, C Brall… - Journal of business …, 2024 - Springer
Data access and data sharing are vital to advance medicine. A growing number of public
private partnerships are set up to facilitate data access and sharing, as private and public …

Willingness to participate in a personalized health cohort–insights from the swiss health study pilot phase

N Bühler, A Frahsa, NG Jaramillo, RM Bourqui… - BMC public health, 2024 - Springer
Background This paper explores the feasibility of establishing a large-scale population-
based cohort and biobank in Switzerland by assessing potential participants' needs …

Perspectives on Data Sharing in Persons With Spinal Cord Injury

FM Warner, B Tong, J McDougall… - Neurotrauma …, 2023 - liebertpub.com
Open data sharing of clinical research aims to improve transparency and support novel
scientific discoveries. There are also risks, including participant identification and the …

What are the bottlenecks to health data sharing in Switzerland? An interview study.

KE Ormond, S Bavamian, C Becherer, C Currat… - Swiss medical …, 2024 - boris.unibe.ch
BACKGROUND While health data sharing for research purposes is strongly supported in
principle, it can be challenging to implement in practice. Little is known about the actual …

[引用][C] Wahrnehmung und Bekanntheit des Internet of Things und deren Auswirkung auf die Schweizer Bevölkerung

P Senn, DG MA