Scoping review of models and frameworks of patient engagement in health services research
Objective To count and describe the elements that overlap (ie, present in two or more) and
diverge between models and frameworks of patient engagement in health services …
diverge between models and frameworks of patient engagement in health services …
Patient and caregiver preferences and prioritized outcomes for cardiac surgery: a scoping review and consultation workshop
N Oravec, RC Arora, B Bjorklund, A Gregora… - The Journal of Thoracic …, 2023 - Elsevier
Objective (s) In light of the absence of patient and caregiver input in Enhanced Recovery
After Surgery Cardiac Surgery guideline development, we conducted a scoping review to …
After Surgery Cardiac Surgery guideline development, we conducted a scoping review to …
Barriers and enablers to consumer and community involvement in research and healthcare improvement: Perspectives from consumer organisations, health services …
Partnering with consumers and patients and the community and public is a research and
healthcare improvement imperative. Consumer and community involvement (CCI) requires …
healthcare improvement imperative. Consumer and community involvement (CCI) requires …
[HTML][HTML] Developing a Canadian evaluation framework for patient and public engagement in research: study protocol
A L'Espérance, N O'Brien, A Grégoire… - Research Involvement …, 2021 - Springer
Background Patient and public engagement (PPE) in research is growing internationally,
and with it, the interest for its evaluation. In Canada, the Strategy for Patient-Oriented …
and with it, the interest for its evaluation. In Canada, the Strategy for Patient-Oriented …
[HTML][HTML] Co-producing psychiatric education with service user educators: A collective autobiographical case study of the meaning, ethics, and importance of payment
Objective Co-production involves service providers and service users collaborating to
design and deliver services together and is gaining attention as a means to improve …
design and deliver services together and is gaining attention as a means to improve …
[HTML][HTML] Future directions for patient engagement in research: a participatory workshop with Canadian patient partners and academic researchers
AM Chudyk, R Stoddard, TA Duhamel… - Health Research Policy …, 2024 - Springer
Background Patient engagement in research (also commonly referred to as patient or
patient and public involvement in research) strives to transform health research wherein …
patient and public involvement in research) strives to transform health research wherein …
[HTML][HTML] The role of family members in psychiatric deep brain stimulation trials: more than psychosocial support
Family members can provide crucial support to individuals participating in clinical trials. In
research on the “newest frontier” of Deep Brain Stimulation (DBS)—the use of DBS for …
research on the “newest frontier” of Deep Brain Stimulation (DBS)—the use of DBS for …
[HTML][HTML] Patient engagement in health research: perspectives from patient participants
J Easley, R Wassersug, S Matthias, M Tompson… - Current …, 2023 - mdpi.com
Background and purpose: Over the past decade, patient engagement (PE) has emerged as
an important way to help improve the relevance, quality, and impact of health research …
an important way to help improve the relevance, quality, and impact of health research …
An ecological approach to understanding and addressing health inequities of systemic lupus erythematosus
MR Reid, AN Danguecan, I Colindres… - Lupus, 2023 - journals.sagepub.com
Systemic Lupus Erythematosus (SLE) is a complex chronic autoimmune disease
disproportionally afflicting women and, in particular, American Indian/Alaska Native, Black …
disproportionally afflicting women and, in particular, American Indian/Alaska Native, Black …
Patient advocates and researchers as partners in cancer research: A winning combination
LD Porter, KA Goodman, J Mailman… - American Society of …, 2023 - ascopubs.org
Inclusion of advocates as partners in research is now required by numerous international
funding agencies. The role of advocates has expanded in recent years to include all areas of …
funding agencies. The role of advocates has expanded in recent years to include all areas of …