Scoping review of models and frameworks of patient engagement in health services research

AM Chudyk, T Horrill, C Waldman, L Demczuk… - BMJ open, 2022 - bmjopen.bmj.com
Objective To count and describe the elements that overlap (ie, present in two or more) and
diverge between models and frameworks of patient engagement in health services …

Patient and caregiver preferences and prioritized outcomes for cardiac surgery: a scoping review and consultation workshop

N Oravec, RC Arora, B Bjorklund, A Gregora… - The Journal of Thoracic …, 2023 - Elsevier
Objective (s) In light of the absence of patient and caregiver input in Enhanced Recovery
After Surgery Cardiac Surgery guideline development, we conducted a scoping review to …

Barriers and enablers to consumer and community involvement in research and healthcare improvement: Perspectives from consumer organisations, health services …

D Ayton, S Braaf, A Jones, H Teede… - Health & Social Care …, 2022 - Wiley Online Library
Partnering with consumers and patients and the community and public is a research and
healthcare improvement imperative. Consumer and community involvement (CCI) requires …

[HTML][HTML] Developing a Canadian evaluation framework for patient and public engagement in research: study protocol

A L'Espérance, N O'Brien, A Grégoire… - Research Involvement …, 2021 - Springer
Background Patient and public engagement (PPE) in research is growing internationally,
and with it, the interest for its evaluation. In Canada, the Strategy for Patient-Oriented …

[HTML][HTML] Co-producing psychiatric education with service user educators: A collective autobiographical case study of the meaning, ethics, and importance of payment

S Soklaridis, A de Bie, RB Cooper, K McCullough… - Academic …, 2020 - Springer
Objective Co-production involves service providers and service users collaborating to
design and deliver services together and is gaining attention as a means to improve …

[HTML][HTML] Future directions for patient engagement in research: a participatory workshop with Canadian patient partners and academic researchers

AM Chudyk, R Stoddard, TA Duhamel… - Health Research Policy …, 2024 - Springer
Background Patient engagement in research (also commonly referred to as patient or
patient and public involvement in research) strives to transform health research wherein …

[HTML][HTML] The role of family members in psychiatric deep brain stimulation trials: more than psychosocial support

M Boulicault, S Goering, E Klein, D Dougherty… - Neuroethics, 2023 - Springer
Family members can provide crucial support to individuals participating in clinical trials. In
research on the “newest frontier” of Deep Brain Stimulation (DBS)—the use of DBS for …

[HTML][HTML] Patient engagement in health research: perspectives from patient participants

J Easley, R Wassersug, S Matthias, M Tompson… - Current …, 2023 - mdpi.com
Background and purpose: Over the past decade, patient engagement (PE) has emerged as
an important way to help improve the relevance, quality, and impact of health research …

An ecological approach to understanding and addressing health inequities of systemic lupus erythematosus

MR Reid, AN Danguecan, I Colindres… - Lupus, 2023 - journals.sagepub.com
Systemic Lupus Erythematosus (SLE) is a complex chronic autoimmune disease
disproportionally afflicting women and, in particular, American Indian/Alaska Native, Black …

Patient advocates and researchers as partners in cancer research: A winning combination

LD Porter, KA Goodman, J Mailman… - American Society of …, 2023 - ascopubs.org
Inclusion of advocates as partners in research is now required by numerous international
funding agencies. The role of advocates has expanded in recent years to include all areas of …