Haemophilia
E Berntorp, K Fischer, DP Hart, ME Mancuso… - Nature reviews Disease …, 2021 - nature.com
Haemophilia A and B are rare congenital, recessive X-linked disorders caused by lack or
deficiency of clotting factor VIII (FVIII) or IX (FIX), respectively. The severity of the disease …
deficiency of clotting factor VIII (FVIII) or IX (FIX), respectively. The severity of the disease …
A review of guidelines for cross-cultural adaptation of questionnaires could not bring out a consensus
Objectives The aim of cross-cultural adaptation (CCA) of a questionnaire is to achieve
equivalence between the original and adapted questionnaire. Here, we aimed to review the …
equivalence between the original and adapted questionnaire. Here, we aimed to review the …
Perceived social support, quality of life and satisfaction with life in elderly people
The aim of this study examines the relationship between quality of life, satisfaction with life
and multidimensional perceived social support in people aged 65 years and older. The …
and multidimensional perceived social support in people aged 65 years and older. The …
The European KIDSCREEN approach to measure quality of life and well-being in children: development, current application, and future advances
U Ravens-Sieberer, M Herdman, J Devine, C Otto… - Quality of life …, 2014 - Springer
Purpose The KIDSCREEN questionnaires were developed by a collaborative effort of
European pediatric researchers for use in epidemiologic public health surveys, clinical …
European pediatric researchers for use in epidemiologic public health surveys, clinical …
Quality of life is substantially worse for community-dwelling older people living with frailty: systematic review and meta-analysis
TF Crocker, L Brown, A Clegg, K Farley… - Quality of Life …, 2019 - Springer
Purpose Frailty is an important predictor of adverse health events in older people, and
improving quality of life (QOL) is increasingly recognised as a focus for services in this …
improving quality of life (QOL) is increasingly recognised as a focus for services in this …
Quality of life in children: A critical examination of concepts, approaches, issues, and future directions
JL Wallander, HM Koot - Clinical psychology review, 2016 - Elsevier
The quality of children's life is important both as an investment in the future of our society
and because children constitute an important group of themselves and deserve to …
and because children constitute an important group of themselves and deserve to …
How is quality of life defined and assessed in published research?
DSJ Costa, R Mercieca-Bebber, C Rutherford… - Quality of Life …, 2021 - Springer
Purpose To ensure clarity in communication in the field of quality of life research, and
meaningful use of 'quality of life'as a research outcome, requires two things: awareness that …
meaningful use of 'quality of life'as a research outcome, requires two things: awareness that …
The Italian SF-36 Health Survey: translation, validation and norming
This article reports on the development and validation of the Italian SF-36 Health Survey
using data from seven studies in which an Italian version of the SF-36 was administered to …
using data from seven studies in which an Italian version of the SF-36 was administered to …
The development of the World Health Organization quality of life assessment instrument (the WHOQOL)
WHOQoL Group - Quality of Life Assessment: International Perspectives …, 1994 - Springer
Abstract The World Health Organization (WHO) is developing an international quality of life
assessment instrument (WHOQOL) which will allow an enquiry into the perception of …
assessment instrument (WHOQOL) which will allow an enquiry into the perception of …
Translating health status questionnaires and evaluating their quality: the IQOLA project approach
This article describes the methods adopted by the International Quality of Life Assessment
(IQOLA) project to translate the SF-36 Health Survey. Translation methods included the …
(IQOLA) project to translate the SF-36 Health Survey. Translation methods included the …