Haemophilia

E Berntorp, K Fischer, DP Hart, ME Mancuso… - Nature reviews Disease …, 2021 - nature.com
Haemophilia A and B are rare congenital, recessive X-linked disorders caused by lack or
deficiency of clotting factor VIII (FVIII) or IX (FIX), respectively. The severity of the disease …

A review of guidelines for cross-cultural adaptation of questionnaires could not bring out a consensus

J Epstein, RM Santo, F Guillemin - Journal of clinical epidemiology, 2015 - Elsevier
Objectives The aim of cross-cultural adaptation (CCA) of a questionnaire is to achieve
equivalence between the original and adapted questionnaire. Here, we aimed to review the …

Perceived social support, quality of life and satisfaction with life in elderly people

DS Şahin, Ö Özer, MZ Yanardağ - Educational Gerontology, 2019 - Taylor & Francis
The aim of this study examines the relationship between quality of life, satisfaction with life
and multidimensional perceived social support in people aged 65 years and older. The …

The European KIDSCREEN approach to measure quality of life and well-being in children: development, current application, and future advances

U Ravens-Sieberer, M Herdman, J Devine, C Otto… - Quality of life …, 2014 - Springer
Purpose The KIDSCREEN questionnaires were developed by a collaborative effort of
European pediatric researchers for use in epidemiologic public health surveys, clinical …

Quality of life is substantially worse for community-dwelling older people living with frailty: systematic review and meta-analysis

TF Crocker, L Brown, A Clegg, K Farley… - Quality of Life …, 2019 - Springer
Purpose Frailty is an important predictor of adverse health events in older people, and
improving quality of life (QOL) is increasingly recognised as a focus for services in this …

Quality of life in children: A critical examination of concepts, approaches, issues, and future directions

JL Wallander, HM Koot - Clinical psychology review, 2016 - Elsevier
The quality of children's life is important both as an investment in the future of our society
and because children constitute an important group of themselves and deserve to …

How is quality of life defined and assessed in published research?

DSJ Costa, R Mercieca-Bebber, C Rutherford… - Quality of Life …, 2021 - Springer
Purpose To ensure clarity in communication in the field of quality of life research, and
meaningful use of 'quality of life'as a research outcome, requires two things: awareness that …

The Italian SF-36 Health Survey: translation, validation and norming

G Apolone, P Mosconi - Journal of clinical epidemiology, 1998 - Elsevier
This article reports on the development and validation of the Italian SF-36 Health Survey
using data from seven studies in which an Italian version of the SF-36 was administered to …

The development of the World Health Organization quality of life assessment instrument (the WHOQOL)

WHOQoL Group - Quality of Life Assessment: International Perspectives …, 1994 - Springer
Abstract The World Health Organization (WHO) is developing an international quality of life
assessment instrument (WHOQOL) which will allow an enquiry into the perception of …

Translating health status questionnaires and evaluating their quality: the IQOLA project approach

M Bullinger, J Alonso, G Apolone, A Leplège… - Journal of clinical …, 1998 - Elsevier
This article describes the methods adopted by the International Quality of Life Assessment
(IQOLA) project to translate the SF-36 Health Survey. Translation methods included the …