Neuroimaging of the preterm brain: review and recommendations

TE Inder, LS de Vries, DM Ferriero, PE Grant… - The Journal of …, 2021 - jpeds.com
The American Academy of Pediatrics'(AAP) recommendations for “Routine neuroimaging of
the preterm brain” focuses on cranial ultrasound (cUS) screening, initially for the diagnosis …

Supporting families in their child's journey with neonatal encephalopathy and therapeutic hypothermia

B Pilon, AK Craig, ME Lemmon, A Goeller… - Seminars in Fetal and …, 2021 - Elsevier
Neonates and families face challenges in hypothermic therapy, including trauma to parents,
extreme emotions, and unfamiliarity with the medical system. Communication is an essential …

Preterm intraventricular hemorrhage/posthemorrhagic hydrocephalus

TE Inder, JM Perlman, JJ Volpe - Volpe's Neurology of the Newborn, 2025 - Elsevier
Germinal matrix–intraventricular hemorrhage (GMH-IVH) is the most common variety of
neonatal intracranial hemorrhage and is characteristic of the premature infant. This form of …

A valued voice: A qualitative analysis of parental decision‐making preferences in emergent paediatric surgery

EM Carlisle, LA Shinkunas, E Ruba… - Health …, 2023 - Wiley Online Library
Introduction Shared decision‐making, with an emphasis on patient autonomy, is often
advised in healthcare decision‐making. However, this may be difficult to implement in …

[HTML][HTML] Making medication communication visible in community pharmacies-pharmacists' experience using a question prompt list in the patient meeting

K Svensberg, M Khashi, S Dobric, ML Guirguis… - Research in Social and …, 2022 - Elsevier
Background Even though patient engagement in the pharmacy encounter is low, few studies
focus on activating patients. A Question Prompt List (QPL) has been used successfully in …

Assessment of parent understanding in conferences for critically ill neonates

MC Barks, EA Schindler, PA Ubel, MG Jiao… - Patient education and …, 2022 - Elsevier
Objectives This study aimed to characterize the use and impact of assessments of
understanding in parent-clinician communication for critically ill infants. Methods We …

Question prompt lists and caregiver question asking in pediatric specialty appointments: A randomized controlled trial

M Waltz, H Yan, RJ Cadigan, C Canter, L Bain… - Patient education and …, 2023 - Elsevier
Abstract Objective Question prompt lists (QPLs) have been effective at increasing patient
involvement and question asking in medical appointments, which is critical for shared …

“Reading the room:” A qualitative analysis of pediatric surgeons' approach to clinical counseling

EM Carlisle, LA Shinkunas, MT Lieberman… - Journal of pediatric …, 2023 - Elsevier
Background In our prior analysis of parental preferences for discussions with pediatric
surgeons, we identified that parents prefer more guidance from surgeons when discussing …

“It starts with a knock on the door”: Caregiver and provider perspectives on healthcare communication for youth with intellectual and developmental disabilities

RA Northrup, LA Jacobson, AE Pritchard - Patient Education and …, 2024 - Elsevier
Objectives Effective healthcare communication (HCC) is critical for youth with intellectual
and developmental disabilities (IDD) who may have complex healthcare needs. The goal of …

“I Didn't Know What I Didn't Know:” Assessment of Adolescent Oncology Patient Engagement in Decision-Making

G Chen, MT Lieberman, LA Shinkunas… - Journal of Surgical …, 2024 - Elsevier
Introduction Little is known about the best way to engage an adolescent oncology patient in
decision-making. To integrate adolescent oncology patients most effectively in decision …