Ethical considerations and palliative care in patients with amyotrophic lateral sclerosis: a review

V Danel-Brunaud, L Touzet, L Chevalier, C Moreau… - Revue …, 2017 - Elsevier
Amyotrophic lateral sclerosis (ALS) is not a curable disease, but it is treatable. By definition,
much of the care provided to ALS patients is palliative, even though active life-sustaining …

Discussions about treatment restrictions in chronic neurologic diseases: a structured review

AA Seeber, A Hijdra, M Vermeulen, DL Willems - Neurology, 2012 - AAN Enterprises
Objective: Many incurable neurologic diseases have predictable complications during their
course or at their end stage. Timely discussions of potential treatment restrictions may …

Withdrawal of invasive home mechanical ventilation in patients with advanced amyotrophic lateral sclerosis: ten years of Danish experience

PS Dreyer, M Felding, CS Klitnæs… - Journal of palliative …, 2012 - liebertpub.com
Background: Due to the growing use of home mechanical ventilation in amyotrophic lateral
sclerosis (ALS), physicians are increasingly confronted with patients seeking discontinuation …

Ethical considerations in the management of amyotrophic lateral sclerosis

A Eisen, C Krieger - Progress in Neurobiology, 2013 - Elsevier
This article examines some of the ethical concerns relevant for the management of
amyotrophic lateral sclerosis (ALS). We emphasize the importance for providing a …

[PDF][PDF] End-of-life decision making in respiratory failure. The therapeutic choices in chronic respiratory failure in a 7-item questionnaire

DE Rinnenburger, MG Alma, D Bigioni… - Annali dell'Istituto …, 2012 - SciELO Public Health
INTRODUCTION: The transition from paternalistic medicine to a healthcare culture centred
on the patient's decision making autonomy presents problems of communication and …

Communication: breaking the news

R Sloan, GD Borasio - W Palliative care in amyotrophic lateral …, 2014 - books.google.com
Communication: breaking the news Page 38 Chapter 3 Communication: breaking the news
Richard Sloan and Gian Domenico Borasio Summary Telling a patient that they have an …

Auditoría clínica del manejo de la esclerosis lateral amiotrófica en situación terminal: resultados preliminares

JMN Olarte, MC Jiménez, CP Aznar, MS Isac… - Medicina Paliativa, 2013 - Elsevier
Objetivos Auditar la calidad de la atención brindada por nuestra Unidad de Cuidados
Paliativos (UCP) a nuestros pacientes de esclerosis lateral amiotrófica (ELA), y comparar …

Chapitre 4. Évaluation éthique des téléconsultations de suivi des patients atteints de sclérose latérale amyotrophique en phase avancée

V Danel Brunaud - Journal international de bioéthique et d'éthique des …, 2021 - cairn.info
L'épidémie COVID a bouleversé l'organisation du suivi et de la prise en charge des malades
atteints de sclérose latérale amyotrophique (SLA). Les téléconsultations (TLC) se sont …

Fonctions d'une unité de soins palliatifs dans le parcours de soins de patients atteints de SLA

V Duchêne, N Begat, F Chaumier, P Corcia… - … Palliative: Soins de …, 2017 - Elsevier
Résumé La sclérose latérale amyotrophique est une pathologie neurodégénérative
incurable qui nécessite une approche pluridisciplinaire. En 2002, des Centres de …

[引用][C] Ethique et droits fondamentaux des personnes âgées: la limite des soins

N BERCOVICI–natacha