Systematic review of supportive care needs in patients with primary malignant brain tumors

E Ford, S Catt, A Chalmers, L Fallowfield - Neuro-oncology, 2012 - academic.oup.com
In adults, primary malignant brain tumors (PMBT) are rare, but they have a devastating
impact and the chances for survival are limited. UK clinical guidance on supportive care for …

The impact of a high-grade glioma on everyday life: a systematic review from the patient's and caregiver's perspective

W Sterckx, A Coolbrandt, BD de Casterlé… - European Journal of …, 2013 - Elsevier
BACKGROUND: With poor prognosis and disabling symptomatology high-grade gliomas
affect not only the patient but also the family. PURPOSE: The aim of this systematic review is …

Exploring factors and caregiver outcomes associated with feelings of preparedness for caregiving in family caregivers in palliative care: a correlational, cross-sectional …

A Henriksson, K Årestedt - Palliative medicine, 2013 - journals.sagepub.com
Background: Family caregivers in palliative care often report feeling insufficiently prepared
to handle the caregiver role. Preparedness has been confirmed as a variable that may …

The experience of family caregivers caring for a terminal patient at home: A research review

JM Martín, M Olano-Lizarraga… - International journal of …, 2016 - Elsevier
Introduction One of the key aspects of the care of terminal patients is care delivered in their
own home. Increasingly, the process of dying is moving from hospitals to homes. Although …

Enhancing quality of life and mastery of informal caregivers of high-grade glioma patients: a randomized controlled trial

FW Boele, W Hoeben, K Hilverda, J Lenting… - Journal of Neuro …, 2013 - Springer
High-grade gliomas (HGG) are serious primary brain tumors that may prevent the patient
from functioning normally in social, emotional and cognitive respect. Often the partner's role …

The start of caring for an elderly dependent family member: a qualitative metasynthesis

L Moral-Fernández, A Frías-Osuna, S Moreno-Cámara… - BMC geriatrics, 2018 - Springer
Background The family often takes care of an elderly person who suddenly becomes
dependent. This greatly affects different aspects of the caregivers' lives. The aim of this study …

Carer preparedness improved by providing a supportive educational intervention for carers of patients with high-grade glioma: RCT results

GKB Halkett, EA Lobb, JL Phillips, E McDougall… - Journal of Neuro …, 2023 - Springer
Background High-grade glioma (HGG) is a rapidly progressing and debilitating disease.
Family carers take on multiple responsibilities and experience high levels of distress. We …

Existential distress among caregivers of patients with brain tumors: a review of the literature

AJ Applebaum, M Kryza-Lacombe… - Neuro-oncology …, 2016 - academic.oup.com
Background Attention to existential needs is a component of comprehensive oncologic care,
and understanding these needs among informal caregivers of patients with brain tumors is …

Family caregivers' level of mastery predicts survival of patients with glioblastoma: a preliminary report

FW Boele, CW Given, BA Given, HS Donovan… - Cancer, 2017 - Wiley Online Library
BACKGROUND Glioblastoma multiforme (GBM) is associated with a poor prognosis, and
patients rely heavily on family caregivers for physical and emotional support. The capability …

Rates and risks for late referral to hospice in patients with primary malignant brain tumors

EL Diamond, D Russell, M Kryza-Lacombe… - Neuro …, 2015 - academic.oup.com
Background Primary malignant brain tumors (PMBTs) are devastating malignancies with
poor prognosis. Optimizing psychosocial and supportive care is critical, especially in the …