Parental decision-making for medically complex infants and children: an integrated literature review

KA Allen - International Journal of Nursing Studies, 2014 - Elsevier
Background Many children with life-threatening conditions who would have died at birth are
now surviving months to years longer than previously expected. Understanding how parents …

A systematic review of issues around antenatal screening and prenatal diagnostic testing for genetic disorders: women of Asian origin in western countries

J Yu - Health & social care in the community, 2012 - Wiley Online Library
Antenatal screening has become standard practice in many countries. However, not all
pregnant women choose to be tested. In the UK, the incidence of some birth defects is found …

Socioeconomic inequalities in outcome of pregnancy and neonatal mortality associated with congenital anomalies: population based study

LK Smith, JLS Budd, DJ Field, ES Draper - Bmj, 2011 - bmj.com
Objectives To investigate socioeconomic inequalities in outcome of pregnancy and neonatal
mortality associated with congenital anomalies. Design Retrospective population based …

Long‐term parental psychological distress among parents of children with a malformation—a prospective longitudinal study

M Skreden, H Skari, UF Malt, G Haugen… - American Journal of …, 2010 - Wiley Online Library
We previously reported that prenatal diagnosis of malformations is associated with
increased parental psychological distress after birth compared to distress in parents with …

Pregnant women's perspectives on decision-making when a fetal malformation is detected by ultrasound examination

N Asplin, H Wessel, L Marions, SG Öhman - Sexual & Reproductive …, 2013 - Elsevier
OBJECTIVES: The aims of the study were to explore factors influencing the decision to
continue or terminate pregnancy due to detection of fetal malformation following ultrasound …

Will the introduction of non‐invasive prenatal testing for D own's syndrome undermine informed choice?

C Silcock, LM Liao, M Hill, LS Chitty - Health Expectations, 2015 - Wiley Online Library
Objective To investigate whether the introduction of non‐invasive pre‐natal testing for
Down's syndrome (DS) has the potential to undermine informed choice. Participants Three …

Variables influencing pregnancy termination following prenatal diagnosis of fetal chromosome abnormalities

A Hawkins, A Stenzel, J Taylor, VY Chock… - Journal of genetic …, 2013 - Springer
The objective of this study was to identify variables that may influence the decision to
terminate or continue a pregnancy affected by a chromosome abnormality. We performed a …

Interpretations of informed choice in antenatal screening: a cross-cultural, Q-methodology study

S Ahmed, LD Bryant, Z Tizro, D Shickle - Social science & medicine, 2012 - Elsevier
Informed choice is internationally recognised and accepted as an important aspect of ethical
healthcare. In the UK, NHS antenatal screening policies state that their primary aim is to …

Decision-making on terminating pregnancy for Muslim Arab women pregnant with fetuses with congenital anomalies: maternal affect and doctor-patient …

A Gesser-Edelsburg, NAE Shahbari - Reproductive Health, 2017 - Springer
Background This study focused on decision-making on terminating pregnancy for Arab
Muslim women in Israel who were pregnant with fetuses diagnosed with congenital …

Autism spectrum disorders: a qualitative study of attitudes toward prenatal genetic testing and termination decisions of affected pregnancies

LS Chen, L Xu, SU Dhar, M Li, D Talwar… - Clinical genetics, 2015 - Wiley Online Library
In the United States, prenatal genetic testing (PGT) for Autism Spectrum Disorders (ASD) is
currently available via clinical genetic services. Such testing may inform parents about their …