[HTML][HTML] Relational autonomy: what does it mean and how is it used in end-of-life care? A systematic review of argument-based ethics literature
C Gómez-Vírseda, Y De Maeseneer, C Gastmans - BMC medical ethics, 2019 - Springer
Background Respect for autonomy is a key concept in contemporary bioethics and end-of-
life ethics in particular. Despite this status, an individualistic interpretation of autonomy is …
life ethics in particular. Despite this status, an individualistic interpretation of autonomy is …
Communication with parents concerning withholding or withdrawing of life-sustaining interventions in neonatology
A Janvier, K Barrington, B Farlow - Seminars in perinatology, 2014 - Elsevier
The nature and content of the conversations between the healthcare team and the parents
concerning withholding or withdrawing of life-sustaining interventions for neonates vary …
concerning withholding or withdrawing of life-sustaining interventions for neonates vary …
[HTML][HTML] Impact of nurse-patient relationship on quality of care and patient autonomy in decision-making
J Molina-Mula, J Gallo-Estrada - International journal of environmental …, 2020 - mdpi.com
Background: The patient is observed to acquire a passive role and the nurse an expert role
with a maternalistic attitude. This relationship among others determines the capacity for …
with a maternalistic attitude. This relationship among others determines the capacity for …
[HTML][HTML] Relational autonomy in end-of-life care ethics: a contextualized approach to real-life complexities
C Gómez-Vírseda, Y De Maeseneer, C Gastmans - BMC Medical Ethics, 2020 - Springer
Background Respect for autonomy is a paramount principle in end-of-life ethics.
Nevertheless, empirical studies show that decision-making, exclusively focused on the …
Nevertheless, empirical studies show that decision-making, exclusively focused on the …
Beyond individualism: Is there a place for relational autonomy in clinical practice and research?
The dominant, individualistic understanding of autonomy that features in clinical practice
and research is underpinned by the idea that people are, in their ideal form, independent …
and research is underpinned by the idea that people are, in their ideal form, independent …
Silent voices: Family caregivers' narratives of involvement in palliative care
AS Tarberg, M Kvangarsnes, T Hole, M Thronæs… - Nursing …, 2019 - Wiley Online Library
Aim To explore how family caregivers experience involvement in palliative care. Design A
qualitative design with a narrative approach was used. Methods Purposive sampling and …
qualitative design with a narrative approach was used. Methods Purposive sampling and …
Culturally adapted consensus definition and action guideline: Japan's advance care planning
J Miyashita, S Shimizu, R Shiraishi, M Mori… - Journal of Pain and …, 2022 - Elsevier
Context A conceptual framework for advance care planning is lacking in societies like
Japan's valuing family-centered decision-making. Objectives A consensus definition of …
Japan's valuing family-centered decision-making. Objectives A consensus definition of …
Medical decision making: paternalism versus patient-centered (autonomous) care
CA Rodriguez-Osorio… - Current opinion in critical …, 2008 - journals.lww.com
Clinicians must understand the range of preferences in a society and should offer the
opportunity to participate in treatment by sharing decision-making responsibility. This would …
opportunity to participate in treatment by sharing decision-making responsibility. This would …
A patient in the clinic; a person in the world. Why shared decision making needs to center on the person rather than the medical encounter
Interest in shared decision making (SDM) has increased and become widely promoted.
However, from both practical and measurement perspectives, SDM's origin as an outgrowth …
However, from both practical and measurement perspectives, SDM's origin as an outgrowth …
Surrogate decision making: reconciling ethical theory and clinical practice
JT Berger, EG DeRenzo, J Schwartz - Annals of internal medicine, 2008 - acpjournals.org
The care of adult patients without decision-making abilities is a routine part of medical
practice. Decisions for these patients are typically made by surrogates according to a …
practice. Decisions for these patients are typically made by surrogates according to a …