[HTML][HTML] Relational autonomy: what does it mean and how is it used in end-of-life care? A systematic review of argument-based ethics literature

C Gómez-Vírseda, Y De Maeseneer, C Gastmans - BMC medical ethics, 2019 - Springer
Background Respect for autonomy is a key concept in contemporary bioethics and end-of-
life ethics in particular. Despite this status, an individualistic interpretation of autonomy is …

Communication with parents concerning withholding or withdrawing of life-sustaining interventions in neonatology

A Janvier, K Barrington, B Farlow - Seminars in perinatology, 2014 - Elsevier
The nature and content of the conversations between the healthcare team and the parents
concerning withholding or withdrawing of life-sustaining interventions for neonates vary …

[HTML][HTML] Impact of nurse-patient relationship on quality of care and patient autonomy in decision-making

J Molina-Mula, J Gallo-Estrada - International journal of environmental …, 2020 - mdpi.com
Background: The patient is observed to acquire a passive role and the nurse an expert role
with a maternalistic attitude. This relationship among others determines the capacity for …

[HTML][HTML] Relational autonomy in end-of-life care ethics: a contextualized approach to real-life complexities

C Gómez-Vírseda, Y De Maeseneer, C Gastmans - BMC Medical Ethics, 2020 - Springer
Background Respect for autonomy is a paramount principle in end-of-life ethics.
Nevertheless, empirical studies show that decision-making, exclusively focused on the …

Beyond individualism: Is there a place for relational autonomy in clinical practice and research?

ES Dove, SE Kelly, F Lucivero, M Machirori… - Clinical …, 2017 - journals.sagepub.com
The dominant, individualistic understanding of autonomy that features in clinical practice
and research is underpinned by the idea that people are, in their ideal form, independent …

Silent voices: Family caregivers' narratives of involvement in palliative care

AS Tarberg, M Kvangarsnes, T Hole, M Thronæs… - Nursing …, 2019 - Wiley Online Library
Aim To explore how family caregivers experience involvement in palliative care. Design A
qualitative design with a narrative approach was used. Methods Purposive sampling and …

Culturally adapted consensus definition and action guideline: Japan's advance care planning

J Miyashita, S Shimizu, R Shiraishi, M Mori… - Journal of Pain and …, 2022 - Elsevier
Context A conceptual framework for advance care planning is lacking in societies like
Japan's valuing family-centered decision-making. Objectives A consensus definition of …

Medical decision making: paternalism versus patient-centered (autonomous) care

CA Rodriguez-Osorio… - Current opinion in critical …, 2008 - journals.lww.com
Clinicians must understand the range of preferences in a society and should offer the
opportunity to participate in treatment by sharing decision-making responsibility. This would …

A patient in the clinic; a person in the world. Why shared decision making needs to center on the person rather than the medical encounter

ML Clayman, P Gulbrandsen, MA Morris - Patient education and …, 2017 - Elsevier
Interest in shared decision making (SDM) has increased and become widely promoted.
However, from both practical and measurement perspectives, SDM's origin as an outgrowth …

Surrogate decision making: reconciling ethical theory and clinical practice

JT Berger, EG DeRenzo, J Schwartz - Annals of internal medicine, 2008 - acpjournals.org
The care of adult patients without decision-making abilities is a routine part of medical
practice. Decisions for these patients are typically made by surrogates according to a …