Purpose The aim of this systematic review was to document evidence of the association
between leisure participation and quality of life (QoL) in children with neurodevelopmental …

Although numerous paediatric-based health-related quality-of-life (HR-QOL) instruments are
currently in use, there still remain conceptual, methodological and developmental issues to …

Scales and instruments play an important role in health research and practice. It is important
that studies that report on their psychometric properties do so in a way such that readers can …

To examine how inclusive our schools are after 25 years of educational reform, students with
disabilities and their parents were asked to identify current barriers and provide suggestions …

There is increasing interest in measuring quality of life (QL) in children and adolescents, but
this interest has developed without careful attention given numerous important issues …

Purpose: There is no adequate measure of health‐related quality of life (HRQOL)
specifically for children with epilepsy. The aim of this study was to develop an epilepsy …

This qualitative study explores how children and adolescents with medically refractory
seizures experience the impact of epilepsy on their quality of life (QOL) within the domains of …

The majority of previous studies investigating the impact of epilepsy on the QOL of
adolescents have used proxy opinions from clinicians and/or parents. This study highlights …

Aims: To review and make recommendations about the format and quality of health-related
self-report measures for children aged 3–8 years. Methods: Literature searches used to …

Aim There are many misconceptions about what constitutes 'quality of life'(QoL). It is often
difficult for researchers and clinicians to determine which instruments will be most …