Quality of life and leisure participation in children with neurodevelopmental disabilities: a thematic analysis of the literature
N Dahan-Oliel, K Shikako-Thomas, A Majnemer - Quality of Life Research, 2012 - Springer
Purpose The aim of this systematic review was to document evidence of the association
between leisure participation and quality of life (QoL) in children with neurodevelopmental …
between leisure participation and quality of life (QoL) in children with neurodevelopmental …
Evaluating health-related quality-of-life studies in paediatric populations: some conceptual, methodological and developmental considerations and recent applications
Although numerous paediatric-based health-related quality-of-life (HR-QOL) instruments are
currently in use, there still remain conceptual, methodological and developmental issues to …
currently in use, there still remain conceptual, methodological and developmental issues to …
Recommendations for reporting the results of studies of instrument and scale development and testing
DL Streiner, J Kottner - Journal of advanced nursing, 2014 - Wiley Online Library
Scales and instruments play an important role in health research and practice. It is important
that studies that report on their psychometric properties do so in a way such that readers can …
that studies that report on their psychometric properties do so in a way such that readers can …
Barriers and facilitators to inclusive education
J Pivik, J McComas, M Laflamme - Exceptional children, 2002 - journals.sagepub.com
To examine how inclusive our schools are after 25 years of educational reform, students with
disabilities and their parents were asked to identify current barriers and provide suggestions …
disabilities and their parents were asked to identify current barriers and provide suggestions …
Quality of life measurement in children and adolescents: issues, instruments, and applications
JL Wallander, M Schmitt… - Journal of clinical …, 2001 - Wiley Online Library
There is increasing interest in measuring quality of life (QL) in children and adolescents, but
this interest has developed without careful attention given numerous important issues …
this interest has developed without careful attention given numerous important issues …
Validation of a new quality of life measure for children with epilepsy
M Sabaz, DR Cairns, JA Lawson, N Nheu… - …, 2000 - Wiley Online Library
Purpose: There is no adequate measure of health‐related quality of life (HRQOL)
specifically for children with epilepsy. The aim of this study was to develop an epilepsy …
specifically for children with epilepsy. The aim of this study was to develop an epilepsy …
I just want to be normal: a qualitative study exploring how children and adolescents view the impact of intractable epilepsy on their quality of life
IM Elliott, L Lach, ML Smith - Epilepsy & behavior, 2005 - Elsevier
This qualitative study explores how children and adolescents with medically refractory
seizures experience the impact of epilepsy on their quality of life (QOL) within the domains of …
seizures experience the impact of epilepsy on their quality of life (QOL) within the domains of …
[HTML][HTML] Quality of life and psychosocial development in adolescents with epilepsy: a qualitative investigation using focus group methods
MJ McEwan, CA Espie, J Metcalfe, MJ Brodie… - Seizure, 2004 - Elsevier
The majority of previous studies investigating the impact of epilepsy on the QOL of
adolescents have used proxy opinions from clinicians and/or parents. This study highlights …
adolescents have used proxy opinions from clinicians and/or parents. This study highlights …
Characteristics of health-related self-report measures for children aged three to eight years: a review of the literature
J Cremeens, C Eiser, M Blades - Quality of Life Research, 2006 - Springer
Aims: To review and make recommendations about the format and quality of health-related
self-report measures for children aged 3–8 years. Methods: Literature searches used to …
self-report measures for children aged 3–8 years. Methods: Literature searches used to …
Quality of life instruments for children and adolescents with neurodisabilities: how to choose the appropriate instrument
E Waters, E Davis, GM Ronen… - … medicine & child …, 2009 - Wiley Online Library
Aim There are many misconceptions about what constitutes 'quality of life'(QoL). It is often
difficult for researchers and clinicians to determine which instruments will be most …
difficult for researchers and clinicians to determine which instruments will be most …