'A constant black cloud': the emotional impact of informal caregiving for someone with a lower-grade glioma

B Rimmer, M Balla, L Dutton, J Lewis… - Qualitative Health …, 2024 - journals.sagepub.com
Those closest to people with lower-grade gliomas (LGGs) often assume the role of informal
caregiver (IC). The additional responsibilities mean ICs of people with cancer can …

The experience of caregiving for adults with benign brain tumors: An integrative review

AK McDaniel, B Carlson, IF Dunn… - Neuro-Oncology …, 2024 - academic.oup.com
Background Caregiving for the adult benign brain tumor (aBBT) population is unique, as
patients' extended period of survivorship poses significant challenges related to the long …

Evaluation of the telehealth making sense of brain tumor psychological support intervention for people with primary brain tumor and their caregivers: A randomized …

T Ownsworth, S Chambers, S Jones, G Parker… - Psycho …, 2023 - Wiley Online Library
Objective This pragmatic randomized control trial aimed to evaluate clinical efficacy of the
Making Sense of Brain Tumour program delivered via videoconferencing (Tele‐MAST) for …

Inequalities in access to neuro-oncology supportive care and rehabilitation: a survey of healthcare professionals' perspectives

F Boele, L Rosenlund, S Nordentoft… - Neuro-Oncology …, 2024 - academic.oup.com
Background Neuro-oncology patients and caregivers should have equitable access to
rehabilitation, supportive-, and palliative care. To investigate existing issues and potential …

'It was never about me': A qualitative inquiry into the experiences of psychological support and perceived support needs of family caregivers of people with high-grade …

KM Lion, A Jamieson, A Billin, S Jones… - Palliative …, 2024 - journals.sagepub.com
Background: Family caregivers of people with high-grade glioma often report high rates of
psychological distress, which has been attributed to the unique aspects of the disease and …

Understanding Reasons for Cancer Disparities in Italy: A Qualitative Study of Barriers and Needs of Cancer Patients and Healthcare Providers

G Ferraris, V Coppini, MV Ferrari, D Monzani… - Cancer …, 2024 - journals.sagepub.com
Background The second leading cause of death in Italy is cancer. Substantial disparities
persist in the level of care and outcomes for cancer patients across various communities …

Quality of life and broader experiences of those with acoustic neuroma: a mixed methods approach

L Ben-Harosh, S Barker-Collo, A Nowacka… - Brain …, 2024 - CSIRO Publishing
Background Acoustic neuromas (ANs) are consistently associated with decreased quality of
life (QOL) related to the physical and psychosocial impacts of symptoms experienced from …

Adesão à quimioterapia antineoplásica oral, apoio social e bem-estar de pacientes com câncer cerebral: estudo correlacional

BSX De Alencar, BSP Macedo… - Revista Baiana de …, 2023 - revbaianaenferm.ufba.br
Objetivos: identificar as percepções sobre o bem-estar, apoio social, intensidade dos
sintomas e o seu impacto nas atividades diárias de pacientes com cânceres cerebrais e …

ADHERENCE TO ORAL ANTINEOPLASTIC CHEMOTHERAPY, SOCIAL SUPPORT AND WELL-BEING OF PATIENTS WITH BRAIN CANCER: A CORRELATIONAL …

BS Ximenes de Alencar… - Revista Baiana de …, 2023 - search.ebscohost.com
Objectives: to identify perceptions about well-being, social support, intensity of symptoms
and their impact on the daily activities of patients with brain cancers and correlate the …