[HTML][HTML] The use of digital and remote communication technologies as a tool for multiple sclerosis management: narrative review

M Marziniak, G Brichetto, P Feys… - JMIR rehabilitation …, 2018 - rehab.jmir.org
Despite recent advances in multiple sclerosis (MS) care, many patients only infrequently
access health care services, or are unable to access them easily, for reasons such as …

A comparative analysis of patient-reported expanded disability status scale tools

CDE Collins, B Ivry, JD Bowen… - Multiple Sclerosis …, 2016 - journals.sagepub.com
Background: Patient-Reported Expanded Disability Status Scale (PREDSS) tools are an
attractive alternative to the Expanded Disability Status Scale (EDSS) during long term or …

The association between disability progression, relapses, and treatment in early relapse onset MS: an observational, multi-centre, longitudinal cohort study

V Fuh-Ngwa, JC Charlesworth, Y Zhou, I van der Mei… - Scientific reports, 2023 - nature.com
The indirect contribution of multiple sclerosis (MS) relapses to disability worsening
outcomes, and vice-versa, remains unclear. Disease modifying therapies (DMTs) are …

Mental health of people with multiple sclerosis during the COVID-19 outbreak: A prospective cohort and cross-sectional case–control study of the UK MS Register

A Garjani, R Hunter, GR Law… - Multiple Sclerosis …, 2022 - journals.sagepub.com
Background: People with MS (pwMS) have had higher rates of anxiety and depression than
the general population before the COVID-19 pandemic, placing them at higher risk of …

A novel digital care management platform to monitor clinical and subclinical disease activity in multiple sclerosis

W Van Hecke, L Costers, A Descamps, A Ribbens… - Brain sciences, 2021 - mdpi.com
In multiple sclerosis (MS), the early detection of disease activity or progression is key to
inform treatment changes and could be supported by digital tools. We present a novel CE …

The relationship between ethnicity and multiple sclerosis characteristics in the United Kingdom: A UK MS Register study

BM Jacobs, L Schalk… - Multiple Sclerosis …, 2024 - journals.sagepub.com
Background: Previous studies have suggested differences in multiple sclerosis (MS) severity
according to ethnicity. Methods: Data were obtained from the UK MS Register, a prospective …

[HTML][HTML] Development and validation of the self-reported disability status scale (SRDSS) to estimate EDSS-categories

M Kaufmann, A Salmen, L Barin, MA Puhan… - Multiple sclerosis and …, 2020 - Elsevier
Abstract Background Clinician-assessed Expanded Disease Status Scale (EDSS) is gold
standard in clinical investigations but normally unavailable in population-based, patient …

COVID-19 is associated with new symptoms of multiple sclerosis that are prevented by disease modifying therapies

A Garjani, RM Middleton, R Hunter… - Multiple sclerosis and …, 2021 - Elsevier
Background Infections can trigger exacerbations of multiple sclerosis (MS). The effects of the
coronavirus disease 2019 (COVID-19) on MS are not known. The aim of this study was to …

[HTML][HTML] A comparison of the measurement properties of the PROMIS Fatigue (MS) 8a against legacy fatigue questionnaires

P Kamudoni, J Johns, KF Cook, R Salem… - Multiple Sclerosis and …, 2022 - Elsevier
Background Amidst the growing number of patient-reported outcome (PRO) measures of
fatigue being used in multiple sclerosis (MS) clinical trials and clinics, evidence-based …

Patient-reported outcomes in multiple sclerosis: a prospective registry cohort study

A Lerede, J Rodgers, RM Middleton… - Brain …, 2023 - academic.oup.com
Registries have the potential to tackle some of the current limitations in determining the long-
term impact of multiple sclerosis. Online assessments using patient-reported outcomes can …