Research assessing attitudes toward consent processes for high-throughput genomic-wide
technologies and widespread sharing of data is limited. In order to develop a better …

In April 2007, a research team led by M. Burgess conducted a public engagement, the BC
Biobank Deliberation, focused on the issue of biobanks. The project was motivated by an …

Numerous studies of genetic epidemiology and post-genomics in respiratory diseases rely
on the use of biobanks, defined as organised biological sample collections with associated …

Clinical practice guidelines derived from genetic research using population-based biobanks
could dramatically change the nature of personal and public health medicine. Centralized …

Objective: This paper presents the results of the first public consultation for the creation of a
large-scale genetic database, the Quebec CARTaGENE project. A consultation has been …

Background This study aimed to assess patient attitudes as part of the planning process for
a large-scale effort to collect genetic samples for research from excess clinical blood …

Public trust is critical in any project requiring significant public support, both in monetary
terms and to encourage participation. The research community has widely recognized the …

Advances in genomic technologies and the promise of" personalised medicine" have
spurred the interest of researchers, healthcare systems, and the general public. However …

The research importance of biobanked biological materials and their derived data is
growing, especially as these are increasingly linked with individual and population‐level …

We examined the experiences, perceptions, and values that are brought to bear when
individuals from different ethnic and cultural backgrounds consider participating in health …