Systemic sclerosis (SSc) and morphea are autoimmune sclerosing diseases that cause
significant morbidity, and in the case of SSc, mortality. The pathogenesis of both SSc and …

Objective The prevalence and types of psychosocial complications of juvenile localized
scleroderma (JLS), also known as morphea, an inflammatory and sclerosing disease …

Abstract Background The Localized Scleroderma Quality of Life Instrument (LoSQI) is a
disease‐specific patient‐reported outcome (PRO) measure designed for children and …

Background According to current standards, no existing patient‐reported outcome (PRO)
measures have high‐quality validity evidence for use with individuals diagnosed with …

Objective To assess parent perspectives regarding the emotional health impact of juvenile
myositis (JM) on patients and families, and to assess preferences for emotional health …

The strengths of drawing‐based approaches for encouraging children's participation in
health research and facilitating communication with them have been increasingly …

Abstract Purpose Anchoring vignettes (AVs) are a promising measurement technique to
reduce bias in patient-reported outcome (PRO) measures by helping researchers …

Juvenile localised scleroderma (JLS) is a condition that results in inflammation and fibrosis
of the skin in children and young people. Systemic treatment with immunomodulation is most …

Background For many children and young people (CYP) with paediatric rheumatic
conditions, glucocorticoid medications and their associated side-effects have a substantial …

Background Juvenile localized scleroderma (LS) and systemic sclerosis (SSc) are rare
pediatric conditions often associated with severe morbidities. Delays in diagnosis are …