A rapid realist review of patient engagement in patient-oriented research and health care system impacts: part one

E Zibrowski, T Carr, S McDonald, H Thiessen… - Research Involvement …, 2021 - Springer
Background Patient-oriented research affords individuals with opportunities to genuinely
contribute to health care research as members of research teams. While checklists and …

Practical guidance for engaging patients in health research, treatment guidelines and regulatory processes: results of an expert group meeting organized by the World …

M de Wit, C Cooper, P Tugwell, N Bere… - Aging clinical and …, 2019 - Springer
There is increasing emphasis on patient-centred research to support the development,
approval and reimbursement of health interventions that best meet patients' needs …

Designing a tool to support patient and public involvement in research projects: the Involvement Matrix

DW Smits, K Van Meeteren, M Klem, M Alsem… - Research involvement …, 2020 - Springer
Background Interest in patient involvement in research is growing. Research should rather
be 'with'or 'by'patients, and not only be 'about'or 'for'patients. Patients' active involvement in …

How to support a co-creative research approach in order to foster impact. The development of a Co-creation Impact Compass for healthcare researchers

A van Dijk-de Vries, A Stevens, T van der Weijden… - PLoS …, 2020 - journals.plos.org
Active participation of stakeholders in health research practice is important to generate
societal impact of outcomes, as innovations will more likely be implemented and …

The ethics of patient and public involvement across the research process: towards partnership with people with aphasia

D Hersh, M Israel, C Shiggins - Aphasiology, 2022 - Taylor & Francis
ABSTRACT Background Conducting Patient and Public Involvement (PPI) in health
research is a way of building knowledge that incorporates the experience of service users …

The impact of participatory dementia research on researchers: a systematic review

A Kowe, H Panjaitan, OA Klein, M Boccardi… - …, 2022 - journals.sagepub.com
Participatory approaches are increasingly required and used in research. In this review, we
examined the impact (benefits and disadvantages) of participatory dementia research on …

Patient engagement in a national research network: barriers, facilitators, and impacts

M Gonzalez, T Ogourtsova, A Zerbo, C Lalonde… - Research Involvement …, 2023 - Springer
Background Little is known about patient engagement in the context of large teams or
networks. Quantitative data from a larger sample of CHILD-BRIGHT Network members …

Supporting health researchers to realize meaningful patient involvement in research: exploring researchers' experiences and needs

S Harmsen, CACM Pittens, E Vroonland… - Science and Public …, 2022 - academic.oup.com
Involving patients in health research requires a new way of working for all stakeholders
involved, including researchers. This research aimed (1) to gain deeper insight into the …

[PDF][PDF] Practical guidance for patient-centred health research

M de Wit, C Cooper, JY Reginster… - The Lancet, 2019 - eprints.whiterose.ac.uk
To support the development, approval and reimbursement of medical interventions that best
meet patients' needs, there is increasing emphasis on patient-centred research through the …

Patient involvement in basic rheumatology research at Nijmegen: a three year's responsive evaluation of added value, pitfalls and conditions for success

MPT de Wit, MI Koenders, Y Neijland… - BMC rheumatology, 2022 - Springer
Background Empirical evidence for effective patient-researcher collaboration in basic
research is lacking. This study aims to explore good working models and impact of patient …