Improving representation in clinical trials and research: building research equity for women and underrepresented groups

K Bibbins-Domingo, A Helman - 2022 - pubmed.ncbi.nlm.nih.gov
The United States has long made substantial investments in clinical research with the goal
of improving the health and well-being of our nation. There is no doubt that these …

Sarcoidosis: Updates on therapeutic drug trials and novel treatment approaches

ON Obi, LA Saketkoo, AM Russell… - Frontiers in …, 2022 - frontiersin.org
Sarcoidosis is a systemic granulomatous inflammatory disease of unknown etiology. It
affects the lungs in over 90% of patients yet extra-pulmonary and multi-organ involvement is …

A framework for ethical payment to research participants

L Gelinas, EA Largent, IG Cohen… - … England Journal of …, 2018 - Mass Medical Soc
Ethical Payment to Research Participants The authors propose a framework for evaluating
the appropriateness of payments to research participants. They distinguish three acceptable …

[HTML][HTML] Paying research participants: regulatory uncertainty, conceptual confusion, and a path forward

EA Largent, HF Lynch - Yale journal of health policy, law, and …, 2017 - ncbi.nlm.nih.gov
The practice of offering payment to individuals in exchange for their participation in clinical
research is widespread and longstanding. Nevertheless, such payment remains the source …

Should we pay research participants? Feminist political economy for ethical practices in precarious times

R Warnock, FMN Taylor, A Horton - Area, 2022 - Wiley Online Library
Questions of paying research participants have taken on a new urgency as contemporary
geographies of precarity, inequality and austerity affect both potential participants and, to …

Strategies for research participant engagement: a synthetic review and conceptual framework

CA Wong, WB Song, M Jiao, E O'Brien, P Ubel… - Clinical …, 2021 - journals.sagepub.com
Background: Research participant engagement, which we define as recruitment and
retention in clinical trials, is a costly and challenging issue in clinical research. Research …

The ethical anatomy of payment for research participants

J Różyńska - Medicine, Health Care and Philosophy, 2022 - Springer
In contrast to most publications on the ethics of paying research subjects, which start by
identifying and analyzing major ethical concerns raised by the practice (in particular, risks of …

When is it ethical for physician-investigators to seek consent from their own patients?

SR Morain, S Joffe, EA Largent - The American Journal of …, 2019 - Taylor & Francis
Classic statements of research ethics advise against permitting physician-investigators to
obtain consent for research participation from patients with whom they have preexisting …

Rethinking elite interviews through moments of discomfort: The role of information and power

LF Ntienjom Mbohou… - International Journal of …, 2022 - journals.sagepub.com
Interviews with policy and political officials are central in social science research. While
these actors are traditionally conceived as elites, holding similar or more power and …

Payment in challenge studies: ethics, attitudes and a new payment for risk model

O Grimwade, J Savulescu, A Giubilini, J Oakley… - Journal of medical …, 2020 - jme.bmj.com
Controlled Human Infection Model (CHIM) research involves the infection of otherwise
healthy participants with disease often for the sake of vaccine development. The COVID-19 …