[HTML][HTML] The information needs of relatives of childhood cancer patients and survivors: a systematic review of qualitative evidence

A Ilic, Y Sievers, K Roser, K Scheinemann… - Patient Education and …, 2023 - Elsevier
Objectives To synthesize qualitative research on the information needs of relatives of
childhood cancer patients and survivors. Methods Systematic searches of PubMed …

Patient/family education for newly diagnosed pediatric oncology patients: Consensus recommendations from a children's oncology group expert panel

W Landier, JA Ahern, LP Barakat… - Journal of Pediatric …, 2016 - journals.sagepub.com
There is a paucity of data to support evidence-based practices in the provision of
patient/family education in the context of a new childhood cancer diagnosis. Since the …

Parent‐centered communication at time of pediatric cancer diagnosis: A systematic review

C Hentea, ER Cheng, NS Bauer… - Pediatric Blood & …, 2018 - Wiley Online Library
There are limited data focused on parental communication needs surrounding the time
when a child is diagnosed with cancer. In this systematic review, we synthesized current …

A standardized education checklist for parents of children newly diagnosed with cancer: A report from the Children's Oncology Group

C Rodgers, V Bertini, MA Conway… - Journal of Pediatric …, 2018 - journals.sagepub.com
Parents of children newly diagnosed with cancer must acquire new knowledge and skills in
order to safely care for their child at home. Institutional variation exists in the methods and …

Supporting family decision-making for a child who is seriously ill: creating synchrony and connection

VN Madrigal, KP Kelly - Pediatrics, 2018 - publications.aap.org
The families of children with chronic or serious illness are sometimes faced with difficult
decisions never previously imagined. We offer a stepwise approach in building a human …

Children's Oncology Group KidsCare smartphone application for parents of children with cancer

W Landier, PD Campos Gonzalez… - Pediatric Blood & …, 2023 - Wiley Online Library
Background Parents of children with cancer must learn and retain crucial information
necessary to provide safe care for their child. Smartphone applications (apps) provide a …

The lived experiences of mothers who are parenting children with leukemia

O Al Omari, EJ Roach, L Shakman, A Al Hashmi… - Cancer …, 2021 - journals.lww.com
Background Mothers parenting children with leukemia face innumerable challenges in
meeting their own personal needs, as well as the needs of their ill child. Objective To …

[HTML][HTML] Transição de cuidados para o domicílio na perspectiva de pais de filhos com leucemia

FM Silva-Rodrigues, CSG Bernardo… - Revista Gaúcha de …, 2019 - SciELO Brasil
OBJETIVO Descrever as experiências de pais de crianças e adolescentes com leucemia
quanto à transição de cuidados do hospital para o domicílio. MÉTODO Estudo qualitativo …

Pediatric education discharge support strategies for newly diagnosed children with cancer

M Hockenberry, M Haugen, A Slaven, M Skeens… - Cancer …, 2021 - journals.lww.com
Background Discharge education practices vary among institutions and lack a standardized
approach for newly diagnosed pediatric oncology patients and their parents. Objective The …

“There's no playbook for when your kid has cancer”: desired elements of an electronic resource to support pediatric cancer communication

KA Greenzang, ML Scavotto, AC Revette… - Pediatric blood & …, 2023 - Wiley Online Library
Introduction Acute lymphoblastic leukemia (ALL), the most common childhood malignancy,
has a relatively favorable long‐term prognosis. Yet the complexity of treatment and the …