A systematic review and meta-analysis of suicidality in autistic and possibly autistic people without co-occurring intellectual disability

V Newell, L Phillips, C Jones, E Townsend, C Richards… - Molecular Autism, 2023 - Springer
Background Suicidality is highly prevalent in autistic people without co-occurring intellectual
disabilities, and high autistic traits are found in adults who have attempted suicide. However …

The adaptation of self-report measures to the needs of people with intellectual disabilities: A systematic review.

R Kooijmans, G Mercera, PE Langdon… - … : Science and Practice, 2022 - psycnet.apa.org
Persons with intellectual disabilities (ID) may have difficulties providing reliable and valid
accounts of their personal experiences through self-report measures. The aim of the current …

Does language matter? Identity-first versus person-first language use in autism research: A response to Vivanti

M Botha, J Hanlon, GL Williams - Journal of autism and developmental …, 2023 - Springer
In response to Vivanti's 'Ask The Editor…'paper [Journal of Autism and Developmental
Disorders, 50 (2), 691–693], we argue that the use of language in autism research has …

“Having all of your internal resources exhausted beyond measure and being left with no clean-up crew”: Defining autistic burnout

DM Raymaker, AR Teo, NA Steckler, B Lentz… - Autism in …, 2020 - liebertpub.com
Background: Although autistic adults often discuss experiencing “autistic burnout” and
attribute serious negative outcomes to it, the concept is almost completely absent from the …

Confirming the nature of autistic burnout

SRC Arnold, JM Higgins, J Weise, A Desai… - …, 2023 - journals.sagepub.com
Autistic burnout is an experience commonly described by autistic people (# AutBurnout and#
AutisticBurnout on social media). Recently, two definitions of this syndrome have been …

Development and validation of the suicidal behaviours questionnaire-autism spectrum conditions in a community sample of autistic, possibly autistic and non-autistic …

SA Cassidy, L Bradley, H Cogger-Ward, J Rodgers - Molecular autism, 2021 - Springer
Background Autistic people and those with high autistic traits are at high risk of experiencing
suicidality. Yet, there are no suicidality assessment tools developed or validated for these …

[HTML][HTML] When disability is defined by behavior, outcome measures should not promote “passing”

A Ne'eman - AMA journal of ethics, 2021 - ncbi.nlm.nih.gov
When disability is defined by behavior, researchers and clinicians struggle to identify
appropriate measures to assess clinical progress. Some choose the reduction or elimination …

Evaluating measures to assess loneliness in autistic adults

K Grace, A Remington, J Davies, L Crane - Autism, 2024 - journals.sagepub.com
Several measures have been developed to assess loneliness in the general population.
Here, we examined if, and how accurately, widely-used measures capture the experience of …

Loneliness in autistic adults: A systematic review

K Grace, A Remington, B Lloyd-Evans, J Davies… - …, 2022 - journals.sagepub.com
In this systematic review, we examined quantitative, qualitative and mixed methods studies
on loneliness in autistic adults. A total of 1460 articles were identified, and 34 of these met …

Proxy‐report in individuals with intellectual disability: A scoping review

SL Santoro, K Donelan… - Journal of Applied …, 2022 - Wiley Online Library
Background Views can be collected from individuals (self‐report) or others on their behalf
(proxy‐report). Objective We aimed to review the literature on methods and statistical …