Digital measures that matter to patients: a framework to guide the selection and development of digital measures of health

C Manta, B Patrick-Lake, JC Goldsack - Digital Biomarkers, 2020 - karger.com
Background: With the rise of connected sensor technologies, there are seemingly endless
possibilities for new ways to measure health. These technologies offer researchers and …

Patients as partners in health research: a scoping review

TL McCarron, F Clement, J Rasiah, C Moran… - Health …, 2021 - Wiley Online Library
Background The role of patient involvement in health research has evolved over the past
decade. Despite efforts to engage patients as partners, the role is not well understood. We …

[HTML][HTML] Barriers and facilitators of meaningful patient participation at the collective level in healthcare organizations: A systematic review

HJ Westerink, T Oirbans, MM Garvelink… - Health Policy, 2023 - Elsevier
Introduction Collective patient participation, such as patient participation in policy making,
has become increasingly important to achieve high-quality care. However, there is little …

Engagement of community stakeholders to develop a framework to guide research dissemination to communities

J Cunningham‐Erves, T Mayo‐Gamble… - Health …, 2020 - Wiley Online Library
Background Dissemination of research findings to past study participants and the community‐
at‐large is important. Yet, a standardized process for research dissemination is needed to …

[HTML][HTML] Using patient and family engagement strategies to improve outcomes of health information technology initiatives: scoping review

K Leung, D Lu-McLean, C Kuziemsky, RG Booth… - Journal of medical …, 2019 - jmir.org
Background Many health care organizations around the world have implemented health
information technologies (ITs) to enhance health service efficiency, effectiveness, and safety …

[HTML][HTML] Formative research to design a culturally-appropriate cancer clinical trial education program to increase participation of African American and Latino …

J Cunningham-Erves, C Barajas, TL Mayo-Gamble… - BMC Public Health, 2020 - Springer
Background Addressing knowledge deficiencies about cancer clinical trials and
biospecimen donation can potentially improve participation among racial and ethnic …

A taxonomy of impacts on clinical and translational research from community stakeholder engagement

SC Stallings, AP Boyer, YA Joosten… - Health …, 2019 - Wiley Online Library
Background Community engagement is increasingly recognized as a valuable tool in
clinical and translational research; however, the impact of engagement is not fully …

Development of an intervention aimed at the prevention and treatment of chronic pain in breast cancer survivors: An intervention mapping approach

Y Slaghmuylder, P Pype, A Van Hecke… - Patient Education and …, 2023 - Elsevier
Objective Pain is prevalent among breast cancer survivors and can persist for years,
impeding quality of life. Both prevention and pain treatment are important. However, this …

[HTML][HTML] Clinicians' perspectives on and interest in participating in a clinical data research network across the Southeastern United States

KM Unertl, AM Fair, JS Favours, RJ Dolor… - BMC Health Services …, 2018 - Springer
Background Partnerships between clinicians and researchers could increase the
generalizability of research findings and increase uptake of research results across …

The University of Alabama at Birmingham COVID‐19 Collaborative Outcomes Research Enterprise: Developing an institutional learning health system in response to …

JL Anderson, RA Reamey, EB Levitan… - Learning Health …, 2022 - Wiley Online Library
Introduction As a local response to the COVID‐19 global pandemic, the University of
Alabama at Birmingham (UAB) established the UAB COVID‐19 Collaborative Outcomes …