Alleviating the access abyss in palliative care and pain relief—an imperative of universal health coverage: the Lancet Commission report

FM Knaul, PE Farmer, EL Krakauer, L De Lima… - The Lancet, 2018 - thelancet.com
In agonising, crippling pain from lung cancer, Mr S came to the palliative care service in
Calicut, Kerala, from an adjoining district a couple of hours away by bus. His body language …

Cognitive bias: the downside of shared decision making

S Ozdemir, EA Finkelstein - JCO Clinical cancer informatics, 2018 - ascopubs.org
This narrative review presents theoretical and empirical evidence of common cognitive
biases that are likely to influence treatment choices of patients with cancer and other …

Effects of a nurse-led post-discharge advance care planning programme for community-dwelling patients nearing the end of life and their family members: A …

HYL Chan, JSC Ng, KS Chan, PS Ko… - International journal of …, 2018 - Elsevier
Background Although evidence increasingly demonstrates the effects of advance care
planning, the relevant studies are of questionable quality, and lack consensus regarding …

Advance care planning and caregiver outcomes: intervention efficacy–systematic review

C Malhotra, VA Huynh, M Shafiq… - BMJ Supportive & …, 2023 - spcare.bmj.com
Context Caregivers make difficult end-of-life (EOL) decisions for patients, often adversely
affecting their own psychological health. Understanding whether advance care planning …

Values for the ICECAP-Supportive Care Measure (ICECAP-SCM) for use in economic evaluation at end of life

E Huynh, J Coast, J Rose, P Kinghorn, T Flynn - Social Science & Medicine, 2017 - Elsevier
End of life care may have elements of value that go beyond health. A generic measure of the
benefits of end of life care could be helpful to decision makers. Such a measure, based on …

Individual trade‐offs between possible benefits and risks of cancer treatments: results from a stated preference study with patients with multiple myeloma

D Postmus, S Richard, N Bere… - The …, 2018 - academic.oup.com
Background The objectives of this study were to elicit the preferences of patients with
multiple myeloma regarding the possible benefits and risks of cancer treatments and to …

A systematic review of discrete choice experiments in oncology treatments

H Collacott, V Soekhai, C Thomas, A Brooks… - The Patient-Patient …, 2021 - Springer
Background As the number and type of cancer treatments available rises and patients live
with the consequences of their disease and treatments for longer, understanding …

Development of a discrete-choice experiment (DCE) to elicit adolescent and parent preferences for hypodontia treatment

S Barber, H Bekker, J Marti, S Pavitt… - The Patient-Patient …, 2019 - Springer
Objective Our objective was to develop and test a discrete-choice experiment (DCE) survey
to elicit adolescent and parent preferences for dental care for hypodontia (a developmental …

Using cards to facilitate conversations about wishes and priorities of patients in palliative care

UO Möller, C Pranter, CL Hagelin, I Beck… - Journal of Hospice & …, 2020 - journals.lww.com
To avoid discomfort, health care professionals may hesitate to pursue conversations about
end of life with patients. Certain tools have the potential to facilitate smoother conversations …

Knowledge, attitudes and preferences of palliative and end-of-life care among patients with cancer in mainland China: a cross-sectional study

Q Cheng, Y Duan, H Zheng, X Xu, K Khan, J Xie… - BMJ open, 2021 - bmjopen.bmj.com
Objectives This study aimed to investigate the knowledge and attitudes of patients with
cancer of palliative care and their preferences regarding end-of-life care in mainland China …