Purpose Social media may be particularly valuable in research in rare genetic diseases
because of the low numbers of patients and the rare disease community's robust online …

Abstract Background The Internet is widely used as a source of health information to assist
decision making in pregnancy. Concerningly, the quality of information shared on online …

Background Patients struggling with rare diseases may face challenges caused by care
providers being unfamiliar with their condition. The life span of people with rare diseases …

Young adults are frequent users of social media, but the help and hindrance of social media
for living well with long-term conditions (LTCs) in young adulthood is little-researched. The …

Background Online support communities have become an accessible way of gaining social,
emotional, and informational support from peers and may be particularly useful for …

Objective This study aimed to determine the effects of a neuropsychosocial teleassistance
group-based intervention on improving social cognitive functioning and health-related …

Purpose: The aim of this study was to gain insight into experiences and reflections of
persons with amyotrophic lateral sclerosis and relatives concerning the peer group …

Background Previous studies have shown positive tangible health benefits from using online
support communities for informational support, daily living support, and emotional support …

Background Online discussion forums allow individuals who otherwise may be strangers to
create a community where they can seek and share information. Patients with bone …

Background Social media have shown the potential to support type 1 diabetes self-
management by providing informational, emotional, and peer-to-peer support. However, the …