Research on families living with developmental disability generally and autism specifically is
dominated by a deficit view that elicits an elaborate representation of problems and risks …

The power of social connections is a contemporary focus of research across world regions.
Yet, evidence of challenges to carers' social relationships remains fragmented and …

Studies have shown that stigmatization is linked to lower quality of life; however, only scant
research has examined the association between family caregivers' internalization of stigma …

This research examined the experiences of families living with a child with severe autism.
There is limited literature on the experiences of families when a child has severe autism as …

The authors provide an overview of quality of life (QoL) conceptualization in the field of
intellectual disabilities (ID), provide background information, and set an organizing …

More than 30 years ago, Elder theorised multiple life-course trajectories in domains such as
family and work, punctuated by transitions that create the structure and rhythm of individual …

Background Family quality of life (FQOL) is a recent concept in intellectual/developmental
disability research. Outcomes for the family are important to the provision of services …

The deinstitutionalization movement that began 50 years ago remains a current issue for
professionals and families. Using qualitative phenomenology methodology, we investigated …

The vast majority of children and youth with chronic and complex health conditions who also
have intellectual and developmental disabilities are cared for in their homes. Social, legal …

Este artículo recoge un acercamiento a la literatura reciente sobre la Calidad de Vida
Familiar, destacando aspectos relevantes que pueden servir de base a la evaluación …