Evaluating the impact of a community-based parent training programme for children with cerebral palsy in Ghana

M Zuurmond, D O'Banion, M Gladstone, S Carsamar… - PloS one, 2018 - journals.plos.org
Background In low and middle-income settings, where access to support and rehabilitation
services for children with disabilities are often lacking, the evidence base for community …

Family impact and economic burden among caregivers of children with chronic kidney disease in Assiut, Egypt

MM Darwish, SH Hassan, SF Taha… - Journal of the Egyptian …, 2020 - Springer
Background Chronic disease greatly increases children's dependency on
parents/caregivers (usually mothers) as they face new problems associated with caring for a …

The impact of children with disabilities on parent health-related quality of life and family functioning in Kelantan and its associated factors

SNI Isa, AA Aziz, A Ab Rahman… - … of Developmental & …, 2013 - journals.lww.com
Objectives: Caring for children with disabilities brings about a significant impact on the
parents and families. The purposes of this study were to determine the impact of having …

Family impact of acquired brain injury in children and youth

AJ de Kloet, SAM Lambregts, MAM Berger… - … of Developmental & …, 2015 - journals.lww.com
Objective: To assess the parental view on the impact of pediatric traumatic brain injury (TBI)
and nontraumatic brain injury (NTBI) on the family and its determinants. Methods: Follow-up …

Adaptation and validation of two autism-related measures of skills and quality of life in Ethiopia

A Borissov, I Bakolis, B Tekola, M Kinfe… - …, 2022 - journals.sagepub.com
Although most children with autism and other neurodevelopmental disorders live in low-and
middle-income countries, assessment tools are lacking in these settings. This study aims to …

[HTML][HTML] The impact of raising a child with a developmental or physical health condition in Ethiopia

A de Leeuw, WA Ester, M Kinfe, F Girma… - Research in …, 2024 - Elsevier
Objective Raising a child with a developmental disability or physical health condition can
have a major impact on the lives of their families, especially in low-income countries. We …

[HTML][HTML] Quality of life among caregivers of children with special needs in Kelantan, Malaysia: The importance of psychosocial mediators

SNI Isa, I Ishak, A Ab Rahman, NZM Saat… - … Malaysian Journal of …, 2021 - ncbi.nlm.nih.gov
Background Quality of life (QoL) is an important aspect of well-being for the caregivers of
children with disability, making it a noteworthy outcome. Little is known about the challenges …

[HTML][HTML] Psychometric properties of the Spanish version of the pediatric quality of life inventory family impact module (pedsql FIM)

J Ortega, N Vázquez, IA Caro, F Assalone - Anales de Pediatría (English …, 2023 - Elsevier
Introduction This study analysed the psychometric properties of the Spanish version of the
Pediatric Quality of Life Questionnaire Family Impact Module (PedsQL FIM) in the …

The croatian version of the pediatric quality of life inventory (PedsQL™) family impact module: cross-cultural adaptation and psychometric evaluation

R Knez, D Stevanovic, A Vulić-Prtorić… - Journal of Child and …, 2015 - Springer
Abstract The Pediatric Quality of Life Inventory™ Family Impact Module (PedsQL™ FIM) is a
health-related quality of life and family functioning questionnaire for parents of children with …

[HTML][HTML] Propiedades psicométricas de la versión en castellano del Cuestionario Calidad de Vida Pediátrica Módulo de Impacto Familiar (PedsQL FIM)

J Ortega, N Vázquez, IA Caro, F Assalone - Anales de Pediatría, 2023 - Elsevier
Introducción Este trabajo analiza las propiedades psicométricas de la versión en castellano
del Cuestionario de calidad de vida pediátrica módulo de impacto familiar (PedsQL FIM) en …