Self-management of patients with advanced cancer: a systematic review of experiences and attitudes

SI van Dongen, K De Nooijer, JM Cramm… - Palliative …, 2020 - journals.sagepub.com
Background: Patients with advanced cancer are increasingly expected to self-manage. Thus
far, this topic has received little systematic attention. Aim: To summarise studies describing …

Patient reported outcomes in oncology: changing perspectives—a systematic review

A Silveira, T Sequeira, J Goncalves… - Health and quality of life …, 2022 - Springer
In public health context, oncology is associated with severe negative impact on patients and
on their relatives' quality of life. Over the last decades, survival has remained at 50 …

[HTML][HTML] Dying from COVID-19: loneliness, end-of-life discussions, and support for patients and their families in nursing homes and hospitals. A national register study

P Strang, J Bergström, L Martinsson… - Journal of pain and …, 2020 - Elsevier
Context Preparation for an impending death through end-of-life (EOL) discussions and
human presence when a person is dying is important for both patients and families …

Advance care planning in patients with advanced cancer: A 6-country, cluster-randomised clinical trial

IJ Korfage, G Carreras, CM Arnfeldt Christensen… - PLoS …, 2020 - journals.plos.org
Background Advance care planning (ACP) supports individuals to define, discuss, and
record goals and preferences for future medical treatment and care. Despite being …

Effective communication in palliative care from the perspectives of patients and relatives: a systematic review

M Engel, MC Kars, SCCM Teunissen… - Palliative & Supportive …, 2023 - cambridge.org
ObjectivesIn palliative care, effective communication is essential to adequately meet the
needs and preferences of patients and their relatives. Effective communication includes …

Decision-making in palliative care: patient and family caregiver concordance and discordance—systematic review and narrative synthesis

SM Symmons, K Ryan, SM Aoun… - BMJ supportive & …, 2023 - spcare.bmj.com
Background Decision-making in palliative care usually involves both patients and family
caregivers. However, how concordance and discordance in decision-making manifest and …

[HTML][HTML] Publicly available, interactive web-based tools to support advance care planning: systematic review

C Dupont, T Smets, F Monnet, L Pivodic… - Journal of medical …, 2022 - jmir.org
Background There is an increasing number of interactive web-based advance care planning
(ACP) support tools, which are web-based aids in any format encouraging reflection …

[HTML][HTML] How should end-of-life advance care planning discussions be implemented according to patients and informal carers? A qualitative review of reviews

A Hall, C Rowland, G Grande - Journal of pain and symptom management, 2019 - Elsevier
Context The goal of advance care planning (ACP) is to help ensure that the care people
receive during periods of serious illness is consistent with their preferences and values …

Talking about end of life in general palliative care–what's going on? A qualitative study on end-of-life conversations in an acute care hospital in Denmark

H Bergenholtz, HU Timm, M Missel - BMC palliative care, 2019 - Springer
Background End-of-life (EOL) conversations in hospital should serve to give patients the
opportunity to consider future treatment options and help them clarify their values and …

Unraveling patients' readiness in advance care planning conversations: a qualitative study as part of the ACTION Study

M Zwakman, MM Milota, A Van der Heide… - Supportive Care in …, 2021 - Springer
Purpose Patients' readiness for advance care planning (ACP) is often considered a
prerequisite for starting ACP conversations. Healthcare professionals' uncertainty about …