Impact of dementia on informal care: a systematic review of family caregivers' perceptions

P Lindeza, M Rodrigues, J Costa… - BMJ supportive & …, 2024 - spcare.bmj.com
Introduction Caregivers play a major role in providing all the support and care in daily
activities for their relatives with dementia. To fully describe the influence of dementia …

Advance care planning in dementia: recommendations for healthcare professionals

R Piers, G Albers, J Gilissen, J De Lepeleire… - BMC palliative …, 2018 - Springer
Background Advance care planning (ACP) is a continuous, dynamic process of reflection
and dialogue between an individual, those close to them and their healthcare professionals …

Perspectives of people with dementia and carers on advance care planning and end-of-life care: A systematic review and thematic synthesis of qualitative studies

M Sellars, O Chung, L Nolte, A Tong… - Palliative …, 2019 - journals.sagepub.com
Background: Advance care planning aims to ensure that care received during serious and
chronic illness is consistent with the person's values, preferences and goals. However, less …

Exploring the impact of Covid-19 on the care and quality of life of people with dementia and their carers: a scoping review

P Masterson-Algar, MC Allen, M Hyde, N Keating… - …, 2022 - journals.sagepub.com
This article reports on findings of a scoping review aimed to map the published literature
concerning the impact of Covid-19 on the care and quality of life of people living with …

Perceived barriers and facilitators in providing palliative care for people with severe dementia: the healthcare professionals' experiences

MH Midtbust, RE Alnes, E Gjengedal… - BMC health services …, 2018 - Springer
Background Dementia has become a major public health issue worldwide due to its rapidly
increasing prevalence and an increasing number of dementia-related deaths in long-term …

Barriers to palliative care for advanced dementia: a scoping review

M Erel, EL Marcus… - Annals of palliative …, 2017 - apm.amegroups.org
People with dementia often fail to receive palliative care, despite increased recognition of
their need and eligibility for such care. The aims of this study were to assess the barriers …

A scoping review of gaps and priorities in dementia care in Europe

A Martin, S O'Connor, C Jackson - Dementia, 2020 - journals.sagepub.com
Dementia is a widely recognized public health priority due to the increasing number of
people living with the condition and its attendant health, social, and economic costs …

Delivering optimal care to people with cognitive impairment in Parkinson's disease: a qualitative study of patient, caregiver, and professional perspectives

JS Pigott, N Davies, E Chesterman, J Read… - Parkinson's …, 2023 - Wiley Online Library
Background. Cognitive impairment is common in Parkinson's disease (PD) and associated
with lower quality of life. Cognitive impairment in PD manifests differently to other dementia …

[HTML][HTML] Predictors of emergency department attendance by people with dementia in their last year of life: retrospective cohort study using linked clinical and …

KE Sleeman, G Perera, R Stewart, IJ Higginson - Alzheimer's & Dementia, 2018 - Elsevier
Introduction A fall in hospital deaths in dementia has been interpreted as indicating an
improvement in end-of-life care. Whether other indicators of quality of end-of-life care, such …

What enables good end of life care for people with dementia? A multi-method qualitative study with key stakeholders

C Bamford, R Lee, E McLellan, M Poole… - BMC geriatrics, 2018 - Springer
Background People with advanced dementia often experience suboptimal end of life care
(EoLC) with inadequate pain control, increased hospitalisation, and fewer palliative care …