Systematic review of supportive care needs in patients with primary malignant brain tumors

E Ford, S Catt, A Chalmers, L Fallowfield - Neuro-oncology, 2012 - academic.oup.com
In adults, primary malignant brain tumors (PMBT) are rare, but they have a devastating
impact and the chances for survival are limited. UK clinical guidance on supportive care for …

The impact of a high-grade glioma on everyday life: a systematic review from the patient's and caregiver's perspective

W Sterckx, A Coolbrandt, BD de Casterlé… - European Journal of …, 2013 - Elsevier
BACKGROUND: With poor prognosis and disabling symptomatology high-grade gliomas
affect not only the patient but also the family. PURPOSE: The aim of this systematic review is …

[HTML][HTML] Overview of prognostic factors in adult gliomas

A Sharma, JJ Graber - Annals of palliative medicine, 2021 - apm.amegroups.org
Gliomas represent the majority of malignant central nervous system tumors, with the most
aggressive subtype, glioblastoma, accounting for almost 57% of this entity. Type of glioma …

The interaction between informal cancer caregivers and health care professionals: a survey of caregivers' experiences of problems and unmet needs

L Lund, L Ross, MA Petersen, M Groenvold - Supportive Care in Cancer, 2015 - Springer
Purpose In order to meet the caregiving challenges, informal caregivers often need a
substantial level of interaction with health care professionals (HCPs). This study investigated …

The basic science of patient–physician communication: a critical scoping review

J Forsey, S Ng, P Rowland, R Freeman, C Li… - Academic …, 2021 - journals.lww.com
Purpose Strong verbal communication skills are essential for physicians. Despite a wealth of
medical education research exploring communication skills training, learners struggle to …

“I'm just waiting…”: an exploration of the experience of living and dying with primary malignant glioma

J Philip, A Collins, CA Brand, G Moore… - Supportive Care in …, 2014 - Springer
Purpose Referral to supportive and palliative care services for people with high-grade
primary malignant glioma (PMG) often occurs late in the illness course, despite significant …

Brain cancer patients' levels of distress and supportive care needs over time

GKB Halkett, E Lobb, K Spilsbury, H Dhillon… - Psycho …, 2022 - Wiley Online Library
Purpose This study aimed to describe patient self‐reported distress over time and how this
was associated with wellbeing, and supportive care needs over a 6‐month period from …

Living with a high-grade glioma: A qualitative study of patients' experiences and care needs

W Sterckx, A Coolbrandt, P Clement… - European Journal of …, 2015 - Elsevier
Purpose Patients with high-grade glioma (HGG) face debilitating symptoms and a poor
prognosis. The aims of this study were to better understand how patients with HGG …

Daily life experiences of patients with a high-grade glioma and their caregivers: a longitudinal exploration of rehabilitation and supportive care needs

K Piil, M Juhler, J Jakobsen… - Journal of Neuroscience …, 2015 - journals.lww.com
Background: There is a lack of knowledge regarding the breadth of needs for rehabilitation
and supportive care across the disease and treatment trajectory for patients with a high …

Prognostic awareness, prognostic communication, and cognitive function in patients with malignant glioma

EL Diamond, HG Prigerson, DC Correa… - Neuro …, 2017 - academic.oup.com
Background Malignant glioma (MG) is a devastating neuro-oncologic disease with almost
invariably poor prognosis. Prognostic awareness (PA) is the awareness of incurable disease …