Credit for and control of research outputs in genomic citizen science

CJ Guerrini, JL Contreras - Annual Review of Genomics and …, 2020 - annualreviews.org
Citizen science encompasses activities with scientific objectives in which members of the
public participate as more than passive research subjects from whom personal data or …

How biomedical citizen scientists define what they do: It's all in the name

M Trejo, I Canfield, JO Robinson… - AJOB Empirical …, 2021 - Taylor & Francis
Background As citizen science continues to grow in popularity, there remains disagreement
about what terms should be used to describe citizen science activities and participants. The …

Self-experimentation, ethics, and regulation of vaccines

CJ Guerrini, JS Sherkow, MN Meyer, PJ Zettler - Science, 2020 - science.org
As the coronavirus disease 2019 (COVID-19) pandemic continues to sweep the globe,
several groups have been working to develop and self-administer unapproved, unproven …

The FDA's Power over Non-Therapeutic Uses of Drugs and Devices

PJ Zettler - Wash. & Lee L. Rev., 2021 - HeinOnline
Although we often-and rightly-think of the US Food and Drug Administration (FDA) as
regulating important therapies for patients, the agency also can regulate non-therapeutic …

Core values of genomic citizen science: Results from a qualitative interview study

CJ Guerrini, M Trejo, I Canfield, AL McGuire - BioSocieties, 2020 - pmc.ncbi.nlm.nih.gov
Genomic citizen science initiatives that promote public involvement in the study or
manipulation of genetic information are flourishing. These initiatives are diverse and range …

Safety risks and ethical governance of biomedical applications of synthetic biology

Y Ou, S Guo - Frontiers in Bioengineering and Biotechnology, 2023 - frontiersin.org
Background: In recent years, biomedicine has witnessed rapid advancements in applying
synthetic biology. While these advancements have brought numerous benefits to patients …

«Biohacking»: el transhumanismo de garaje

P Gayozzo - Revista Iberoamericana de Bioética, 2021 - revistas.comillas.edu
El biohacking es un movimiento ciudadano que acerca el conocimiento y la práctica
experimental de las ciencias biológicas a un público no especializado. El presente artículo …

Navigating biosafety concerns within COVID-19 do-it-yourself (DIY) science: An ethnographic and interview study

A Wexler, R Choi, A Pearlman, LM Rasmussen - BioSocieties, 2023 - Springer
Non-establishment or do-it-yourself (DIY) science involves individuals who may not have
formal training conducting experiments outside of institutional settings. While prior …

Biocrime, the Internet-of-Ingestible-Things and Cyber-Biosecurity

M Elgabry - Cyberbiosecurity: A New Field to Deal with Emerging …, 2023 - Springer
As biotechnology continues to develop and the way that science is practised evolves, so too
does the nature of crime. This chapter discusses how a crime science lens can be used to …

[PDF][PDF] Finding a regulatory balance for genetic biohacking

PJ Zettler, CJ Guerrini, JS Sherkow - … Genetic Technologies: Ethical …, 2020 - papers.ssrn.com
Abstract “Biohacking” has emerged as a cultural and scientific phenomenon. Although there
is no consensus on the precise definition of “biohacking,” the term generally describes …