A systematic literature review of individuals' perspectives on privacy and genetic information in the United States

EW Clayton, CM Halverson, NA Sathe, BA Malin - PloS one, 2018 - journals.plos.org
Concerns about genetic privacy affect individuals' willingness to accept genetic testing in
clinical care and to participate in genomics research. To learn what is already known about …

Public understandings of genetics and health

CM Condit - Clinical genetics, 2010 - Wiley Online Library
Condit CM. Public understandings of genetics and health. This review of adult public
understandings of genetics related to health indicates that the public's understandings …

The politics of life itself

N Rose - Theory, culture & society, 2001 - journals.sagepub.com
This article explores contemporary biopolitics in the light of Michel Foucault's oft quoted
suggestion that contemporary politics callslife itself'into question. It suggests that recent …

Genetic research and health disparities

P Sankar, MK Cho, CM Condit, LM Hunt, B Koenig… - Jama, 2004 - jamanetwork.com
Alleviating health disparities in the United States is a goal with broad support. Medical
research undertaken to achieve this goal typically adopts the well-established perspective …

Survey of US public attitudes toward pharmacogenetic testing

SB Haga, JM O'Daniel, GM Tindall, IR Lipkus… - The …, 2012 - nature.com
To assess public attitudes and interest in pharmacogenetic (PGx) testing, we conducted a
random-digit-dial telephone survey of US adults, achieving a response rate of 42%(n …

Public culture and public understanding of genetics: a focus group study

BR Bates - Public understanding of science, 2005 - journals.sagepub.com
As the role of genetic science in everyday life has grown, policymakers have become
concerned about Americans' understandings of this science. Much effort has been devoted …

[HTML][HTML] Impact of limited population diversity of genome-wide association studies

SB Haga - Genetics in Medicine, 2010 - Elsevier
The article describes the limited population diversity of genome-wide association studies
and its resulting impact on the development of commercial genetic tests with restricted …

Changing trends in carrier screening for genetic disease in the United States

SB Nazareth, GA Lazarin, JD Goldberg - Prenatal diagnosis, 2015 - Wiley Online Library
Genetic disease is the leading cause of infant death in the United States, accounting for
approximately 20% of annual infant mortality. Advances in genomic medicine and …

Patients' and physicians' perspectives on pharmacogenetic testing

A Rogausch, D Prause, A Schallenberg… - …, 2006 - Taylor & Francis
Introduction: The integration of pharmacogenetic testing into routine care will, in part,
depend upon the patients 'and physicians 'acceptance of these tests. Empirical data …

The Tuskegee Study of Untreated Syphilis and public perceptions of biomedical research: a focus group study.

BR Bates, TM Harris - Journal of the National Medical Association, 2004 - ncbi.nlm.nih.gov
African Americans are less likely than European Americans to participate in biomedical
research. Researchers often attribute nonparticipation to the" Tuskegee effect." Using critical …