A systematic literature review of individuals' perspectives on privacy and genetic information in the United States
Concerns about genetic privacy affect individuals' willingness to accept genetic testing in
clinical care and to participate in genomics research. To learn what is already known about …
clinical care and to participate in genomics research. To learn what is already known about …
Public understandings of genetics and health
CM Condit - Clinical genetics, 2010 - Wiley Online Library
Condit CM. Public understandings of genetics and health. This review of adult public
understandings of genetics related to health indicates that the public's understandings …
understandings of genetics related to health indicates that the public's understandings …
The politics of life itself
N Rose - Theory, culture & society, 2001 - journals.sagepub.com
This article explores contemporary biopolitics in the light of Michel Foucault's oft quoted
suggestion that contemporary politics callslife itself'into question. It suggests that recent …
suggestion that contemporary politics callslife itself'into question. It suggests that recent …
Genetic research and health disparities
Alleviating health disparities in the United States is a goal with broad support. Medical
research undertaken to achieve this goal typically adopts the well-established perspective …
research undertaken to achieve this goal typically adopts the well-established perspective …
Survey of US public attitudes toward pharmacogenetic testing
SB Haga, JM O'Daniel, GM Tindall, IR Lipkus… - The …, 2012 - nature.com
To assess public attitudes and interest in pharmacogenetic (PGx) testing, we conducted a
random-digit-dial telephone survey of US adults, achieving a response rate of 42%(n …
random-digit-dial telephone survey of US adults, achieving a response rate of 42%(n …
Public culture and public understanding of genetics: a focus group study
BR Bates - Public understanding of science, 2005 - journals.sagepub.com
As the role of genetic science in everyday life has grown, policymakers have become
concerned about Americans' understandings of this science. Much effort has been devoted …
concerned about Americans' understandings of this science. Much effort has been devoted …
[HTML][HTML] Impact of limited population diversity of genome-wide association studies
SB Haga - Genetics in Medicine, 2010 - Elsevier
The article describes the limited population diversity of genome-wide association studies
and its resulting impact on the development of commercial genetic tests with restricted …
and its resulting impact on the development of commercial genetic tests with restricted …
Changing trends in carrier screening for genetic disease in the United States
SB Nazareth, GA Lazarin, JD Goldberg - Prenatal diagnosis, 2015 - Wiley Online Library
Genetic disease is the leading cause of infant death in the United States, accounting for
approximately 20% of annual infant mortality. Advances in genomic medicine and …
approximately 20% of annual infant mortality. Advances in genomic medicine and …
Patients' and physicians' perspectives on pharmacogenetic testing
A Rogausch, D Prause, A Schallenberg… - …, 2006 - Taylor & Francis
Introduction: The integration of pharmacogenetic testing into routine care will, in part,
depend upon the patients 'and physicians 'acceptance of these tests. Empirical data …
depend upon the patients 'and physicians 'acceptance of these tests. Empirical data …
The Tuskegee Study of Untreated Syphilis and public perceptions of biomedical research: a focus group study.
African Americans are less likely than European Americans to participate in biomedical
research. Researchers often attribute nonparticipation to the" Tuskegee effect." Using critical …
research. Researchers often attribute nonparticipation to the" Tuskegee effect." Using critical …