The ethics of big data: current and foreseeable issues in biomedical contexts
BD Mittelstadt, L Floridi - The ethics of biomedical big data, 2016 - Springer
The capacity to collect and analyse data is growing exponentially. Referred to as 'Big Data',
this scientific, social and technological trend has helped create destabilising amounts of …
this scientific, social and technological trend has helped create destabilising amounts of …
Data-driven research and healthcare: public trust, data governance and the NHS
A Kerasidou, C Kerasidou - BMC medical ethics, 2023 - Springer
It is widely acknowledged that trust plays an important role for the acceptability of data
sharing practices in research and healthcare, and for the adoption of new health …
sharing practices in research and healthcare, and for the adoption of new health …
An Ethics Framework for a Learning Health Care System: A Departure from Traditional Research Ethics and Clinical Ethics
RR Faden, NE Kass, SN Goodman… - Hastings Center …, 2013 - Wiley Online Library
Calls are increasing for American health care to be organized as a learning health care
system, defined by the Institute of Medicine as a health care system “in which knowledge …
system, defined by the Institute of Medicine as a health care system “in which knowledge …
[图书][B] For the common good: Philosophical foundations of research ethics
AJ London - 2021 - books.google.com
The foundations of research ethics are riven with fault lines emanating from a fear that if
research is too closely connected to weighty social purposes an imperative to advance the …
research is too closely connected to weighty social purposes an imperative to advance the …
The anthropology of potentiality in biomedicine: an introduction to supplement 7
KS Taussig, K Hoeyer, S Helmreich - Current Anthropology, 2013 - journals.uchicago.edu
At the beginning of the twenty-first century, potentiality serves as a central concept in the life
sciences and in medical practices. This special issue of Current Anthropology explores how …
sciences and in medical practices. This special issue of Current Anthropology explores how …
[HTML][HTML] Paying research participants: The outsized influence of “undue influence”
EA Largent, HF Lynch - Irb, 2017 - ncbi.nlm.nih.gov
Offers of payment to research participants, though quite common, persist as a source of
ethical controversy. US regulations governing human subjects research do not specifically …
ethical controversy. US regulations governing human subjects research do not specifically …
Strings attached: Untangling the ethics of incentives
RW Grant - 2011 - torrossa.com
The idea for this project was born during an undergraduate seminar in ancient Greek
political philosophy. The students were exploring the circumstances under which coercion …
political philosophy. The students were exploring the circumstances under which coercion …
The ethics of smart pills and self-acting devices: autonomy, truth-telling, and trust at the dawn of digital medicine
CM Klugman, LB Dunn, J Schwartz… - The American journal of …, 2018 - Taylor & Francis
Digital medicine is a medical treatment that combines technology with drug delivery. The
promises of this combination are continuous and remote monitoring, better disease …
promises of this combination are continuous and remote monitoring, better disease …
Principles of human subjects protections applied in an opt‐out, de‐identified biobank
J Pulley, E Clayton, GR Bernard… - Clinical and …, 2010 - Wiley Online Library
Abstract BioVU, the Vanderbilt DNA Databank, is one of few biobanks that qualifies as non‐
human subjects research as determined by the local IRB and the federal Office of Human …
human subjects research as determined by the local IRB and the federal Office of Human …
Public preferences about secondary uses of electronic health information
Importance As health information technology grows, secondary uses of personal health
information offer promise in advancing research, public health, and health care. Public …
information offer promise in advancing research, public health, and health care. Public …