An informatics agenda for public health: summarized recommendations from the 2011 AMIA PHI Conference
BL Massoudi, KW Goodman, IJ Gotham… - Journal of the …, 2012 - academic.oup.com
Abstract The AMIA Public Health Informatics 2011 Conference brought together members of
the public health and health informatics communities to revisit the national agenda …
the public health and health informatics communities to revisit the national agenda …
Provider responses to patients controlling access to their electronic health records: a prospective cohort study in primary care
WM Tierney, SA Alpert, A Byrket, K Caine… - Journal of general …, 2015 - Springer
ABSTRACT INTRODUCTION Applying Fair Information Practice principles to electronic
health records (EHRs) requires allowing patient control over who views their data …
health records (EHRs) requires allowing patient control over who views their data …
Building a data sharing model for global genomic research
P Kosseim, ES Dove, C Baggaley, EM Meslin, FH Cate… - Genome biology, 2014 - Springer
Data sharing models designed to facilitate global business provide insights for improving
transborder genomic data sharing. We argue that a flexible, externally endorsed, multilateral …
transborder genomic data sharing. We argue that a flexible, externally endorsed, multilateral …
Up-to-the-Minute Privacy Policies via Gossips in Participatory Epidemiological Studies
Researchers and researched populations are actively involved in participatory
epidemiology. Such studies collect many details about an individual. Recent developments …
epidemiology. Such studies collect many details about an individual. Recent developments …
[HTML][HTML] Ethical issues related to clinical research and rare diseases: 15th Gordon L. Snider Critical Issues Workshop, April 1, 2016, Bethesda, Maryland
M Coors, L Bauer, K Edwards, K Erickson… - … science of rare …, 2017 - ncbi.nlm.nih.gov
Executive summary The Alpha-1 Foundation (Foundation) has a long history of recognizing
the importance of ethical, legal, and social issues (ELSI) in rare genetic disease research [1] …
the importance of ethical, legal, and social issues (ELSI) in rare genetic disease research [1] …
[PDF][PDF] Ethics and health informatics: focus on Latin America and the Caribbean
KW Goodman - Acta Bioethica, 2005 - academia.edu
Expanding use of computers in medicine continues to raise interesting and important ethical
issues. After a brief review of the history of work in ethics in medical informatics, this …
issues. After a brief review of the history of work in ethics in medical informatics, this …