A metasynthesis: uncovering what is known about the experiences of families with children who have life-limiting and life-threatening illnesses

JMG Bally, NR Smith, L Holtslander, V Duncan… - Journal of Pediatric …, 2018 - Elsevier
Purpose To conduct a metasynthesis of qualitative research exploring parents' psychosocial
experiences during complex and traumatic life transitions related to caring for a child with a …

Psychological distress in parents of children treated for cancer: An explorative study

T Carlsson, L Kukkola, L Ljungman, E Hoven… - PloS one, 2019 - journals.plos.org
Objective To explore psychological distress experienced by parents who express a need for
psychotherapy after curative treatment for their child's cancer. Methods 15 parents (eight …

Interrelations between siblings and parents in families living with children with cancer

K Kobayashi, A Hayakawa… - Journal of Family …, 2015 - journals.sagepub.com
Having a child diagnosed with cancer is a stressful event for the family. This exploratory
multimethod study utilized both quantitative and qualitative multiinformant methodologies to …

A Qualitative analysis of the experiences of young patients and caregivers confronting pediatric and adolescent oncology diagnosis

I Testoni, AE Nicoletti, M Moscato… - International Journal of …, 2023 - mdpi.com
Epidemiological studies show that new cases of young oncology patients are increasing by
400,000 every year. Psychological literature has shown that receiving an oncological …

Childhood cancer: Impact on parents' marital dynamics

FM Silva-Rodrigues, R Pan, AMP Sposito… - European Journal of …, 2016 - Elsevier
Purpose To explore and analyze how marital relationships are affected by the crisis
generated by the diagnosis and intensive regimens required in the treatment of children with …

A window into living with an undiagnosed disease: illness narratives from the Undiagnosed Diseases Network

RC Spillmann, A McConkie-Rosell, L Pena… - Orphanet Journal of …, 2017 - Springer
Background Patients' stories of their illnesses help bridge the divide between patients and
providers, facilitating more humane medical care. Illness narratives have been classified into …

Psychosocial profiles of parents of children with undiagnosed diseases: managing well or just managing?

A McConkie-Rosell, SR Hooper, LDM Pena… - Journal of genetic …, 2018 - Springer
Little is known about the psychosocial profiles of parents who have a child with an
undiagnosed chronic illness. The National Institutes of Health Undiagnosed Diseases …

Parents' experiences of having a young child with acute lymphoblastic leukemia in China

Q Liu, MA Petrini, D Luo, BX Yang… - Journal of pediatric …, 2021 - journals.sagepub.com
Background: Understanding parents' experiences is a prerequisite to developing
interventions that are sensitive to needs of children and families. In China, little is known …

Parental expectations of support from healthcare providers during pediatric life-threatening illness: a secondary, qualitative analysis

K Mooney-Doyle, MR Dos Santos, R Szylit… - Journal of pediatric …, 2017 - Elsevier
Purposes To explain parental expectations of support from healthcare providers for their
parenting roles and goals during a child's life-threatening illness (LTI). Design and Methods …

Family experiences of living with an eating disorder: A narrative analysis

A Papathomas, B Smith… - Journal of Health …, 2015 - journals.sagepub.com
Families are considered important in the management and treatment of eating disorders.
Yet, rarely has research focused on family experiences of living with an eating disorder …