Family caregivers of adults with intellectual and developmental disabilities: Outcomes associated with US services and supports

HJ Williamson, EA Perkins - Mental Retardation, 2014 - meridian.allenpress.com
Individuals with intellectual and developmental disabilities (IDD) in the US predominantly
live with their family caregivers. As care delivery and support systems vary widely globally …

Families of individuals with intellectual and developmental disabilities: Policy, funding, services, and experiences

A Hewitt, J Agosta, T Heller… - Intellectual and …, 2013 - meridian.allenpress.com
Abstract Families are critical in the provision of lifelong support to individuals with intellectual
and developmental disabilities (IDD). Today, more people with IDD receive long-term …

Mediating effects of social support on quality of life for parents of adults with autism

CN Marsack, PS Samuel - Journal of autism and developmental disorders, 2017 - Springer
The aim of this study was to examine the mediating effect of formal and informal social
support on the relationship of caregiver burden and quality of life (QOL), using a sample of …

Severe childhood autism: The family lived experience

JB Gorlin, CP McAlpine, A Garwick, E Wieling - Journal of pediatric nursing, 2016 - Elsevier
This research examined the experiences of families living with a child with severe autism.
There is limited literature on the experiences of families when a child has severe autism as …

[HTML][HTML] Impact of supports and partnership on family quality of life

A Balcells-Balcells, C Giné, J Guàrdia-Olmos… - Research in …, 2019 - Elsevier
Abstract Background In recent decades, Family Quality of Life (FQOL) has emerged as a
decisive construct, both to improve the living conditions of the families of people with …

How perceived support relates to child autism symptoms and care-related stress in parents caring for a child with autism

S Goedeke, D Shepherd, J Landon, S Taylor - Research in autism spectrum …, 2019 - Elsevier
Background Caring for a child with autism spectrum disorder (ASD) may be stressful and
subsequently affect parents' ability to manage their child's symptoms. In this research, we …

[图书][B] Intellectual Disability and Clinical Psychology Practice

A Carr, OG McEvoy - 2007 - api.taylorfrancis.com
People with intellectual disability, as children and later as adults, are at significantly
increased risk of facing discrimination, social exclusion, and abuse. Children with …

State of the art of family quality of life in early care and disability: A systematic review

C Francisco Mora, A Ibáñez… - International Journal of …, 2020 - mdpi.com
Background: In recent years, there has been a growing international interest in family quality
of life The objective of this systematic review is to understand and analyze the …

Intellectual disability in children and teenagers: Influence on family and family health. Systematic review

JS Lima-Rodríguez, MT Baena-Ariza… - … Clínica (English Edition), 2018 - Elsevier
Objective To examine the influence of a child or adolescent with intellectual disabilities on
the family unit. Method A systematic review of the literature, following the recommendations …

Needs and supports of people with intellectual disability and their families in Catalonia

R Vilaseca, M Gràcia, FS Beltran… - Journal of Applied …, 2017 - Wiley Online Library
Background The study assesses the support needs of individuals with intellectual disability
and their families in C atalonia. The present authors examine family quality of life (FQ oL) …