What do carers of people with high-grade glioma perceive could improve their preparedness to care, and what additional support do they require?
JJ Clarke, GKB Halkett, E McDougall… - Neuro-oncology …, 2024 - academic.oup.com
Background Concerning levels of stress, strain, and poorer mental health are observed in
family carers of patients diagnosed with high-grade glioma (HGG). Understanding the …
family carers of patients diagnosed with high-grade glioma (HGG). Understanding the …
Exploring the clinical utility of a brief screening measure of unmet supportive care needs in people with high-grade glioma
Background People living with high-grade glioma (HGG) have diverse and complex needs.
Screening aims to detect patients with some level of unmet need requiring triaging and …
Screening aims to detect patients with some level of unmet need requiring triaging and …
Bereavement outcomes of carers of patients with high grade glioma: experiences of support before and after the death
Carers of people with High Grade Glioma (HGG) completed a survey assessing their
anxiety, depression, and grief in addition to open-ended questions exploring their …
anxiety, depression, and grief in addition to open-ended questions exploring their …
Changing practice to improve quality of life in glioma
CE Wassef, SA Cain, KJ Drummond - Journal of Neurosurgery, 2024 - thejns.org
As treatment for glioma advances, with an attendant improvement in length of patient
survival, the quality of that survival has rightly become an increasingly important patient …
survival, the quality of that survival has rightly become an increasingly important patient …
Exploratory multi-methods evaluation of an online intervention for carers of people with high-grade glioma
Background Inadequate knowledge and skills and a lack of confidence to provide care have
been identified as major unmet needs for carers of people with brain cancer. An online …
been identified as major unmet needs for carers of people with brain cancer. An online …
A nurse-led intervention for carers of people with high-grade glioma: A case series of carers reporting high distress
GKB Halkett, E McDougall, M Berg… - Neuro-Oncology …, 2024 - academic.oup.com
Background Carers play an important role in supporting patients diagnosed with high-grade
glioma (HGG). However, this experience is frequently distressing and many carers require …
glioma (HGG). However, this experience is frequently distressing and many carers require …
Comparative Analysis of Quality of Life of Family Caregivers of Patients With Heart Failure and Cancer Who Receive Palliative Care
M Arias-Rojas, EA Holgín… - Journal of …, 2023 - journals.lww.com
Background Quality of life (QoL) is the criterion-standard outcome in palliative care for
patients with various illnesses and their family caregivers. There is a need to determine the …
patients with various illnesses and their family caregivers. There is a need to determine the …
Patient and carer involvement in the formulation of research questions: findings from the Italian guideline on palliative care in adults with glioma
S Veronese, E Bertocchi, B Lissoni, R Rudà… - Neurological …, 2023 - Springer
Abstract Background In 2017, the European Association for Neuro-Oncology (EANO)
published the guideline for palliative care (PC) in adults with glioma. The Italian Society of …
published the guideline for palliative care (PC) in adults with glioma. The Italian Society of …
Paving the way to evidence-based clinical practice: Establishing effective caregiver and family support interventions
K Piil, F Boele - Neuro-Oncology Practice, 2023 - academic.oup.com
Over the past decade, there has been significant progress in the field of neuro-oncology
family caregiving research. 1 Following a brain tumor diagnosis, families commonly face …
family caregiving research. 1 Following a brain tumor diagnosis, families commonly face …
[PDF][PDF] Neuro-Oncology Practice
Background. People living with high-grade glioma (HGG) have diverse and complex needs.
Screening aims to detect patients with some level of unmet need requiring triaging and …
Screening aims to detect patients with some level of unmet need requiring triaging and …