Background: Decisional support is important to people with intellectual disabilities. This
review explores: i) how everyday decision-making is perceived and/or experienced by …

With advances in medical care, more youth with intellectual and/or developmental
disabilities (IDD) are transitioning into adulthood. Patient-and family-centered, integrated …

Given the increased longevity of people with intellectual and developmental disabilities
(IDD), future planning programs are becoming increasingly common. However, although …

The increased lifespan of people with Down syndrome (DS) is a very positive development.
However, parents, who are often the primary caregivers, can struggle to provide the support …

Background Life expectancy for people with Down syndrome is increasing, but older adults
with Down syndrome are at greater risk of developing certain pathologies associated with …

Special needs estate planning introduces additional complexity, including the need to plan
for ongoing caregiving after members of the parents' generation have passed. This …

The parental home is the principal place of residence for adults with developmental
disabilities/intellectual disabilities (DD/ID)(Heller et al., 2007). More than 75% of the adult …

Sisters and brothers play an important role in the lives of their siblings with intellectual and
developmental disabilities (IDD), starting in childhood and commonly increasing in …

The family has long played an important role in decision making among individuals with
intellectual and developmental disabilities (IDD). Historically, such roles included …

Having a child with autism spectrum disorder (ASD) impacts the functioning of the entire
family. While family members experience unique challenges across the lifespan of the …