[HTML][HTML] Telehealth in neurodegenerative diseases: opportunities and challenges for patients and physicians

F De Marchi, E Contaldi, L Magistrelli, R Cantello… - Brain sciences, 2021 - mdpi.com
Telehealth, by definition, is distributing health-related services while using electronic
technologies. This narrative Review describes the technological health services …

The use of telehealth to enhance care in ALS and other neuromuscular disorders

A Haulman, A Geronimo, A Chahwala… - Muscle & …, 2020 - Wiley Online Library
Telehealth has the potential to improve the efficiency of healthcare while reducing the
burden on patients and caregivers. Encounters can be synchronous or asynchronous. When …

[HTML][HTML] Telemedicine as the new outpatient clinic gone digital: position paper from the pandemic health system REsilience PROGRAM (REPROGRAM) international …

S Bhaskar, S Bradley, VK Chattu, A Adisesh… - Frontiers in public …, 2020 - frontiersin.org
Technology has acted as a great enabler of patient continuity through remote consultation,
ongoing monitoring, and patient education using telephone and videoconferencing in the …

New technologies and amyotrophic lateral sclerosis–which step forward rushed by the COVID-19 pandemic?

S Pinto, S Quintarelli, V Silani - Journal of the neurological sciences, 2020 - Elsevier
Abstract Amyotrophic Lateral Sclerosis (ALS) is a fast-progressive neurodegenerative
disease leading to progressive physical immobility with usually normal or mild cognitive …

Epidemiology and economic burden of amyotrophic lateral sclerosis in the United States: A literature review

JD Berry, M Blanchard, K Bonar, E Drane… - … Lateral Sclerosis and …, 2023 - Taylor & Francis
Objective: This review sought to gain a comprehensive, up-to-date understanding of the
epidemiology and cost and healthcare resource use (HCRU) burden of amyotrophic lateral …

[HTML][HTML] Neuromuscular diseases care in the era of COVID-19

B Bertran Recasens, MA Rubio - Frontiers in neurology, 2020 - frontiersin.org
The COVID-19 pandemic has pushed health systems to their limit and forced readjustment
of standards of care for different pathologies. Management of neuromuscular diseases …

Sound‐based cough peak flow estimation in patients with neuromuscular disorders

BB Recasens, A Balañá Corberó, JMM Llorens… - Muscle & …, 2024 - Wiley Online Library
Abstract Introduction/Aims Cough impairment is common in individuals with neuromuscular
disorders and is associated with respiratory infections and shorter survival. Cough strength …

Telemedicine visits in myasthenia gravis: expert guidance and the myasthenia gravis Core exam (MG‐CE)

AC Guidon, S Muppidi, RJ Nowak, JT Guptill… - Muscle & …, 2021 - Wiley Online Library
Abstract Introduction/Aims Telemedicine may be particularly well‐suited for myasthenia
gravis (MG) due to the disorder's need for specialized care, its hallmark fluctuating muscle …

[HTML][HTML] Telehealth-based exercise in amyotrophic lateral sclerosis

V Kudritzki, IM Howard - Frontiers in Neurology, 2023 - frontiersin.org
The Veterans Health Administration (VHA) has served as a leader in the implementation of
telerehabilitation technologies and continues to expand utilization of non-traditional patient …

The adult multidisciplinary respiratory neuromuscular clinic

NM Shah, PB Murphy, G Kaltsakas - Breathe, 2020 - Eur Respiratory Soc
Many neuromuscular disorders (NMD) are complicated by respiratory failure. These patients
are best managed in a multidisciplinary outpatient clinic to provide timely access to the …