Challenges and best practices for recruiting families of children with intellectual disabilities for health research
M MacNeil, B Benoit, T Disher… - Journal of …, 2024 - journals.sagepub.com
Research focused on children with intellectual disabilities has been of increasing interest
over the last two decades. However, a considerable lag in the amount of research that is …
over the last two decades. However, a considerable lag in the amount of research that is …
[HTML][HTML] Youth engagement in research: exploring training needs of youth with neurodevelopmental disabilities
Background Authentic researcher-youth partnerships in patient-oriented research (POR)
where the research responds to the needs expressed by youth themselves are essential to …
where the research responds to the needs expressed by youth themselves are essential to …
[HTML][HTML] Determining the benefits and drawbacks of parents using personal connections and social networks for recruitment in research projects: a qualitative study
L Kim, C Costello, MA Golding… - Research Involvement …, 2023 - Springer
Background It is becoming more common for parents of children with chronic conditions to
join research teams as partners. Parent partnerships can help align research with what is …
join research teams as partners. Parent partnerships can help align research with what is …
Being a sibling of a youth with a neurodisability: A qualitative study about the roles and responsibilities during the transition to adulthood
Background During the transition to adulthood, a common challenge that youth with a
neurodisability may experience is learning how to navigate services in the adult care …
neurodisability may experience is learning how to navigate services in the adult care …
[HTML][HTML] The RESPCCT Study: Community-led Development of a Person-Centered Instrument to Measure Health Equity in Perinatal Services
While Canadian maternal mortality rates suggest widespread access to high-quality care,
perinatal health care outcomes and care experiences among pregnant people in Canada …
perinatal health care outcomes and care experiences among pregnant people in Canada …