Multiple sclerosis caregiving: a systematic scoping review to map current state of knowledge
R Rajachandrakumar… - Health & Social Care in the …, 2022 - Wiley Online Library
Unpaid caregivers, typically family and friends, provide significant amounts of support to
people with multiple sclerosis (MS). Understanding their experiences, needs and challenges …
people with multiple sclerosis (MS). Understanding their experiences, needs and challenges …
The needs of carers of people with multiple sclerosis: a literature review
People with multiple sclerosis depend heavily upon their families and other informal carers
as they receive limited support from health‐care professionals or health‐care services …
as they receive limited support from health‐care professionals or health‐care services …
Social support as a predictor of perceived health status in patients with multiple sclerosis
M Krokavcova, JP van Dijk, I Nagyova… - Patient education and …, 2008 - Elsevier
OBJECTIVE: The main aim of this study was to investigate whether different levels of
perceived social support are associated with different levels of perceived health status in …
perceived social support are associated with different levels of perceived health status in …
Advance care planning in progressive neurological diseases: lessons from ALS
AA Seeber, AJ Pols, A Hijdra, HF Grupstra… - BMC palliative …, 2019 - Springer
Background There is increasing awareness of the need for an integrated palliative care
approach in chronic progressive neurological diseases. Advance care planning (ACP) is an …
approach in chronic progressive neurological diseases. Advance care planning (ACP) is an …
Unmet needs of patients feeling severely affected by multiple sclerosis in Germany: a qualitative study
M Galushko, H Golla, J Strupp, U Karbach… - Journal of Palliative …, 2014 - liebertpub.com
Background: The needs of patients feeling severely affected by multiple sclerosis (MS) have
rarely been investigated. However this is essential information to know before care can be …
rarely been investigated. However this is essential information to know before care can be …
Patients feeling severely affected by multiple sclerosis: how do patients want to communicate about end-of-life issues?
R Buecken, M Galushko, H Golla, J Strupp… - Patient education and …, 2012 - Elsevier
OBJECTIVE: Investigate multiple sclerosis patients' desire to communicate with their
physicians about their disease progression and end-of-life issues. METHODS: Persons …
physicians about their disease progression and end-of-life issues. METHODS: Persons …
'You are just left to get on with it': qualitative study of patient and carer experiences of the transition to secondary progressive multiple sclerosis
F Davies, A Edwards, K Brain, M Edwards, R Jones… - BMJ open, 2015 - bmjopen.bmj.com
Objectives Although the transition to secondary progressive multiple sclerosis (SPMS) is
known to be a period of uncertainty for clinicians, who may find progressive disease …
known to be a period of uncertainty for clinicians, who may find progressive disease …
What do multiple sclerosis patients and their caregivers perceive as unmet needs?
L Lorefice, G Mura, G Coni, G Fenu, C Sardu, J Frau… - BMC neurology, 2013 - Springer
Background Multiple sclerosis (MS) has a major impact on the physical, psychological and
social life of patients and their families. The aim of this study was to evaluate the different …
social life of patients and their families. The aim of this study was to evaluate the different …
Multiple sclerosis patient caregivers: the relationship between their psychological and social needs and burden levels
Y Akkuş - Disability and rehabilitation, 2011 - Taylor & Francis
Purpose. The aim of this study was to discuss the burden of care-giving and the
accompanied psychosocial experiences of caregivers. Method. We studied 49 caregivers of …
accompanied psychosocial experiences of caregivers. Method. We studied 49 caregivers of …
The family of the multiple sclerosis patient: A psychosocial perspective
AB Kouzoupis, T Paparrigopoulos… - International review of …, 2010 - Taylor & Francis
The present review addresses some of the issues pertaining to the family whose member
suffers from multiple sclerosis (MS), the implications that arise, and the potential therapeutic …
suffers from multiple sclerosis (MS), the implications that arise, and the potential therapeutic …