Health issues and informal caregiving in Europe and Italy

M Petrini, F Cirulli, A D'Amore, R Masella… - Annali dell'Istituto …, 2019 - annali.iss.it
Informal caregivers are the unpaid persons who take care of a not self-sufficient family
member, due to old age or chronic illness or disability. As in all the European countries, the …

Who cares? A scoping review about the experiences of parental caregivers of autistic adults

M Ljungberg, UK Schön - Journal of Applied Research in …, 2023 - Wiley Online Library
Background The autistic population is growing and ageing and this also applies to the
parents. Despite this, research about parental experiences is still relatively scarce. Even …

Impact of caregiver burden on quality of life for parents of adult children with autism spectrum disorder

CN Marsack-Topolewski… - American journal on …, 2019 - meridian.allenpress.com
This study sought to examine the impact of time, developmental, emotional, and financial
burdens on the quality of life (QOL) for parents (aged 50+) of an adult child with autism …

Mental health and resilient coping in caregivers of autistic individuals during the COVID-19 pandemic: findings from the families facing COVID study

KA Friesen, JA Weiss, SJ Howe, CM Kerns… - Journal of autism and …, 2021 - Springer
Many caregivers of autistic people experience mental health issues, and the impact of
disruptions due to COVID-19 may present additional challenges for these individuals. This …

Burden of care and quality of life in caregivers of children and adolescents with autism spectrum disorder

AD Patel, A Arya, V Agarwal, PK Gupta… - Asian journal of …, 2022 - Elsevier
Background Autism spectrum disorder is a neurodevelopmental disorder which is increasing
across the globe. The disorder in children not only creates burden of care in caregivers but …

Inclusion, exclusion and isolation of autistic people: Community attitudes and autistic people's experiences

SC Jones, CS Gordon, M Akram, N Murphy… - Journal of Autism and …, 2022 - Springer
There is limited research examining the inclusion of autistic people in their local
communities. This paper reports on two Australian studies which explored this gap, focusing …

[HTML][HTML] Coping, social support, and family quality of life for caregivers of individuals with autism: Meta-analytic structural equation modeling

R Wang, Q Liu, W Zhang - Personality and Individual Differences, 2022 - Elsevier
This study used the meta-analysis structural equation modeling (MASEM) method to explore
the relationship between coping (positive and negative), social support, and family quality of …

Empirical evaluation of the association between daily living skills of adults with autism and parental caregiver burden

CN Marsack-Topolewski, PS Samuel, W Tarraf - Plos one, 2021 - journals.plos.org
Background Despite the joy of parenting, the burden of daily caregiving for children with
autism spectrum disorders (ASD) can be overwhelming and constant. Parents can expect to …

The types and functions of social supports used by parents caring for a child with autism spectrum disorder

D Shepherd, S Goedeke, J Landon, J Meads - Journal of autism and …, 2020 - Springer
The challenges faced by parents caring for a child with Autism Spectrum Disorder (ASD) can
amplify parenting stress, though the impacts of these challenges can be alleviated by social …

How perceived support relates to child autism symptoms and care-related stress in parents caring for a child with autism

S Goedeke, D Shepherd, J Landon, S Taylor - Research in autism spectrum …, 2019 - Elsevier
Background Caring for a child with autism spectrum disorder (ASD) may be stressful and
subsequently affect parents' ability to manage their child's symptoms. In this research, we …