Frequency and format of clinical trial results dissemination to patients: a survey of authors of trials indexed in PubMed
Objective Dissemination of research findings is central to research integrity and promoting
discussion of new knowledge and its potential for translation into practice and policy. We …
discussion of new knowledge and its potential for translation into practice and policy. We …
Exit from brain device research: A modified grounded theory study of researcher obligations and participant experiences
LR Sankary, M Zelinsky, A Machado, T Rush… - AJOB …, 2022 - Taylor & Francis
As clinical trials end, little is understood about how participants exiting from clinical trials
approach decisions related to the removal or post-trial use of investigational brain implants …
approach decisions related to the removal or post-trial use of investigational brain implants …
Revised common rule changes to the consent process and consent form
LL LeCompte, SJ Young - Ochsner Journal, 2020 - ochsnerjournal.org
Background: The Federal Policy for the Protection of Human Subjects—the Common Rule—
was revised in 2017 to reduce administrative burdens for low-risk research while enhancing …
was revised in 2017 to reduce administrative burdens for low-risk research while enhancing …
Health research participants are not receiving research results: a collaborative solution is needed
CR Long, MK Stewart, PA McElfish - Trials, 2017 - Springer
Health research participants want the results of the studies in which they participate but do
not typically receive them. Researchers generally express support for sharing results with …
not typically receive them. Researchers generally express support for sharing results with …
Health researchers' experiences, perceptions and barriers related to sharing study results with participants
CR Long, RS Purvis, E Flood-Grady… - Health Research Policy …, 2019 - Springer
Background Although research participants are generally interested in receiving results from
studies in which they participate, health researchers rarely communicate study findings to …
studies in which they participate, health researchers rarely communicate study findings to …
Best practices for returning research findings to participants: Methodological and ethical considerations for communication researchers
Many research studies have offered ethical guidelines for the recruiting of participants,
solicitation of informed consent, and harvesting of data from communities and individuals …
solicitation of informed consent, and harvesting of data from communities and individuals …
Development of an integrated approach to virtual mind-mapping: methodology and applied experiences to enhance qualitative health research
There is a growing need to better capture comprehensive, nuanced, and multi-faceted
qualitative data while also better engaging with participants in data collection, especially in …
qualitative data while also better engaging with participants in data collection, especially in …
“When I hold my daughter, she quiets, no need [for]any verbal conversation”: A qualitative understanding of responsive caregiving in rural, Sindh Pakistan
E Hentschel, S Siyal, W Warren… - Infant Mental Health …, 2024 - Wiley Online Library
Responsive caregiving is associated with secure attachment and positive child
developmental outcomes. However, there is some debate on whether responsive caregiving …
developmental outcomes. However, there is some debate on whether responsive caregiving …
Leveraging artificial intelligence to summarize abstracts in lay language for increasing research accessibility and transparency
Objective Returning aggregate study results is an important ethical responsibility to promote
trust and inform decision making, but the practice of providing results to a lay audience is not …
trust and inform decision making, but the practice of providing results to a lay audience is not …
Developmental changes in individual alpha frequency: Recording EEG data during public engagement events
Statistical power in cognitive neuroimaging experiments is often very low. Low sample size
can reduce the likelihood of detecting real effects (false negatives) and increase the risk of …
can reduce the likelihood of detecting real effects (false negatives) and increase the risk of …