Frequency and format of clinical trial results dissemination to patients: a survey of authors of trials indexed in PubMed

S Schroter, A Price, M Malički, T Richards, M Clarke - Bmj Open, 2019 - bmjopen.bmj.com
Objective Dissemination of research findings is central to research integrity and promoting
discussion of new knowledge and its potential for translation into practice and policy. We …

Exit from brain device research: A modified grounded theory study of researcher obligations and participant experiences

LR Sankary, M Zelinsky, A Machado, T Rush… - AJOB …, 2022 - Taylor & Francis
As clinical trials end, little is understood about how participants exiting from clinical trials
approach decisions related to the removal or post-trial use of investigational brain implants …

Revised common rule changes to the consent process and consent form

LL LeCompte, SJ Young - Ochsner Journal, 2020 - ochsnerjournal.org
Background: The Federal Policy for the Protection of Human Subjects—the Common Rule—
was revised in 2017 to reduce administrative burdens for low-risk research while enhancing …

Health research participants are not receiving research results: a collaborative solution is needed

CR Long, MK Stewart, PA McElfish - Trials, 2017 - Springer
Health research participants want the results of the studies in which they participate but do
not typically receive them. Researchers generally express support for sharing results with …

Health researchers' experiences, perceptions and barriers related to sharing study results with participants

CR Long, RS Purvis, E Flood-Grady… - Health Research Policy …, 2019 - Springer
Background Although research participants are generally interested in receiving results from
studies in which they participate, health researchers rarely communicate study findings to …

Best practices for returning research findings to participants: Methodological and ethical considerations for communication researchers

EA Hintz, M Dean - Communication Methods and Measures, 2020 - Taylor & Francis
Many research studies have offered ethical guidelines for the recruiting of participants,
solicitation of informed consent, and harvesting of data from communities and individuals …

Development of an integrated approach to virtual mind-mapping: methodology and applied experiences to enhance qualitative health research

SH Ali, AA Merdjanoff, N Parekh… - Qualitative Health …, 2022 - journals.sagepub.com
There is a growing need to better capture comprehensive, nuanced, and multi-faceted
qualitative data while also better engaging with participants in data collection, especially in …

“When I hold my daughter, she quiets, no need [for]any verbal conversation”: A qualitative understanding of responsive caregiving in rural, Sindh Pakistan

E Hentschel, S Siyal, W Warren… - Infant Mental Health …, 2024 - Wiley Online Library
Responsive caregiving is associated with secure attachment and positive child
developmental outcomes. However, there is some debate on whether responsive caregiving …

Leveraging artificial intelligence to summarize abstracts in lay language for increasing research accessibility and transparency

C Shyr, RW Grout, N Kennedy, Y Akdas… - Journal of the …, 2024 - academic.oup.com
Objective Returning aggregate study results is an important ethical responsibility to promote
trust and inform decision making, but the practice of providing results to a lay audience is not …

Developmental changes in individual alpha frequency: Recording EEG data during public engagement events

C Turner, S Baylan, M Bracco, G Cruz, S Hanzal… - Imaging …, 2023 - direct.mit.edu
Statistical power in cognitive neuroimaging experiments is often very low. Low sample size
can reduce the likelihood of detecting real effects (false negatives) and increase the risk of …