The ethics of AI in health care: a mapping review

J Morley, CCV Machado, C Burr, J Cowls, I Joshi… - Social Science & …, 2020 - Elsevier
This article presents a mapping review of the literature concerning the ethics of artificial
intelligence (AI) in health care. The goal of this review is to summarise current debates and …

Genetic basis for congenital heart disease: revisited: a scientific statement from the American Heart Association

ME Pierpont, M Brueckner, WK Chung, V Garg… - Circulation, 2018 - Am Heart Assoc
This review provides an updated summary of the state of our knowledge of the genetic
contributions to the pathogenesis of congenital heart disease. Since 2007, when the initial …

Beyond individualism: Is there a place for relational autonomy in clinical practice and research?

ES Dove, SE Kelly, F Lucivero, M Machirori… - Clinical …, 2017 - journals.sagepub.com
The dominant, individualistic understanding of autonomy that features in clinical practice
and research is underpinned by the idea that people are, in their ideal form, independent …

Genetic screening in sporadic ALS and FTD

MR Turner, A Al-Chalabi, A Chio, O Hardiman… - 2017 - jnnp.bmj.com
The increasing complexity of the genetic landscape in amyotrophic lateral sclerosis (ALS)
and frontotemporal dementia (FTD) presents a significant resource and physician training …

The ethics of consent during labour and birth: episiotomies

M Van Der Pijl, C Verhoeven, M Hollander… - Journal of medical …, 2023 - jme.bmj.com
Unconsented episiotomies and other procedures during labour are commonly reported by
women in several countries, and often highlighted in birth activism. Yet, forced caesarean …

[HTML][HTML] The limits of empowerment: how to reframe the role of mHealth tools in the healthcare ecosystem

J Morley, L Floridi - Science and engineering ethics, 2020 - Springer
This article highlights the limitations of the tendency to frame health-and wellbeing-related
digital tools (mHealth technologies) as empowering devices, especially as they play an …

[HTML][HTML] European recommendations integrating genetic testing into multidisciplinary management of sudden cardiac death

F Fellmann, CG Van El, P Charron, K Michaud… - European Journal of …, 2019 - nature.com
Sudden cardiac death (SCD) accounts for 10–20% of total mortality, ie, one in five
individuals will eventually die suddenly. Given the substantial genetic component of SCD in …

Presymptomatic and predictive genetic testing in minors: a systematic review of guidelines and position papers

P Borry, L Stultiëns, H Nys, JJ Cassiman… - Clinical …, 2006 - Wiley Online Library
The objective of this study is to review ethical and clinical guidelines and position papers
concerning the presymptomatic and predictive genetic testing of minors. The databases …

[HTML][HTML] The ghost in our genes: legal and ethical implications of epigenetics

MA Rothstein, Y Cai, GE Marchant - Health matrix (Cleveland, Ohio …, 2009 - ncbi.nlm.nih.gov
Epigenetics is one of the most scientifically important, and legally and ethically significant,
cutting-edge subjects of scientific discovery. Epigenetics link environmental and genetic …

Letting the family know: balancing ethics and effectiveness when notifying relatives about genetic testing for a familial disorder

GK Suthers, J Armstrong, J McCormack… - Journal of Medical …, 2006 - jmg.bmj.com
Objective: To increase the awareness among at risk relatives of the availability of genetic
testing for a familial disorder while respecting their autonomy and privacy. Methods: This …