The CFHealthHub Learning Health System: Using Real-Time Adherence Data to Support a Community of Practice to Deliver Continuous Improvement in an …

RD Sandler, MJ Wildman - Healthcare, 2022 - mdpi.com
CFHealthHub is a learning health system active in over 50% of adult CF Centres in England,
supporting people with CF to develop habits of self-care around adherence to preventative …

Self-management intervention to reduce pulmonary exacerbations by supporting treatment adherence in adults with cystic fibrosis: a randomised controlled trial

MJ Wildman, A O'Cathain, C Maguire, MA Arden… - Thorax, 2022 - thorax.bmj.com
Introduction Recurrent pulmonary exacerbations lead to progressive lung damage in cystic
fibrosis (CF). Inhaled medications (mucoactive agents and antibiotics) help prevent …

An intervention to support adherence to inhaled medication in adults with cystic fibrosis: the ACtiF research programme including RCT

MJ Wildman, A O'Cathain, D Hind… - Programme Grants for …, 2021 - shura.shu.ac.uk
Background People with cystic fibrosis frequently have low levels of adherence to inhaled
medications. Objectives The objectives were to develop and evaluate an intervention for …

Consolidated guidance for behavioral intervention pilot and feasibility studies

CD Pfledderer, L von Klinggraeff, S Burkart… - Pilot and Feasibility …, 2024 - Springer
Background In the behavioral sciences, conducting pilot and/or feasibility studies (PFS) is a
key step that provides essential information used to inform the design, conduct, and …

Digital technology for early identification of exacerbations in people with cystic fibrosis

CH Wong, S Smith, S Kansra - Cochrane Database of …, 2023 - cochranelibrary.com
Background Cystic fibrosis (CF) is a life‐limiting genetic condition affecting various organ
systems including the gastrointestinal tract, endocrine system and especially the respiratory …

[HTML][HTML] Expert perspectives on pilot and feasibility studies: a Delphi study and consolidation of considerations for behavioral interventions

CD Pfledderer, L von Klinggraeff, S Burkart… - Research …, 2023 - ncbi.nlm.nih.gov
Background In the behavioral sciences, conducting pilot and/or feasibility studies (PFS) is a
key step that provides essential information used to inform the design, conduct, and …

Changing practice in cystic fibrosis: Implementing objective medication adherence data at every consultation, a learning health system and quality improvement …

C Girling, I Davids, N Totton, MA Arden… - Learning Health …, 2024 - Wiley Online Library
Background Medication adherence data are an important quality indicator in cystic fibrosis
(CF) care, yet real‐time objective data are not routinely available. An online application …

A RCT to explore the effectiveness of supporting adherence to nebuliser medication in adults with cystic fibrosis: fidelity assessment of study interventions

JM Bradley, M Hutchings, MA Arden… - BMC Pulmonary …, 2024 - Springer
Background A multi-component self-management intervention 'CFHealthHub'was
developed to reduce pulmonary exacerbations in adults with Cystic Fibrosis (CF) by …

Implementing the use of objective medication adherence data in routine clinical practice via the digital CFHealthHub platform: situation analysis and strategy …

C Girling, A Packham, L Robinson, MA Arden… - Implementation Science …, 2022 - Springer
Background Preventative inhaled treatments preserve lung function and reduce
exacerbations in cystic fibrosis (CF). Self-reported adherence to these treatments is over …

[PDF][PDF] Modelling successful self-management in adults with cystic fibrosis: vicarious self-efficacy from videos of 'people like me'

M Hutchings, S Kirkpatrick, MA Arden, SJ Drabble… - Cureus, 2022 - cureus.com
Background Self-efficacy is an important determinant of treatment adherence, and peer
modelling of success can provide vicarious self-efficacy. A series of patient stories ('talking …