The impact of cognitive and behavioral symptoms on ALS patients and their caregivers
Previously thought to be a pure motor disease, amyotrophic lateral sclerosis (ALS) is now
established as multisystem neurodegenerative disorder that lies on a continuum with …
established as multisystem neurodegenerative disorder that lies on a continuum with …
Supportive care needs of patients with amyotrophic lateral sclerosis/motor neuron disease and their caregivers: A scoping review
Aims and objectives To identify the supportive care needs of amyotrophic lateral
sclerosis/motor neuron disease patients and their caregivers, categorise and summarise …
sclerosis/motor neuron disease patients and their caregivers, categorise and summarise …
[HTML][HTML] An exploration into caring for a stroke-survivor in Lima, Peru: Emotional impact, stress factors, coping mechanisms and unmet needs of informal caregivers
MA Pesantes, LR Brandt, A Ipince, JJ Miranda… - ENeurologicalSci, 2017 - Elsevier
Introduction Understanding local complexities and challenges of stroke-related caregiving
are essential to develop appropriate interventions. Our study aimed to characterize the …
are essential to develop appropriate interventions. Our study aimed to characterize the …
The quality of life and depression in primary caregivers of patients with amyotrophic lateral sclerosis is affected by patient-related and culture-specific conditions
A Maksymowicz-Śliwińska, D Lulé… - … Lateral Sclerosis and …, 2023 - Taylor & Francis
Objective: To analyze the quality of life (QoL) and frequency of depression in primary
caregivers of patients with amyotrophic lateral sclerosis (ALS) in two neighboring European …
caregivers of patients with amyotrophic lateral sclerosis (ALS) in two neighboring European …
Psychological support for family caregivers of patients with amyotrophic lateral sclerosis at the time of the coronavirus disease 2019 pandemic: A pilot study using a …
M Sharbafshaaer, D Buonanno, C Passaniti… - Frontiers in …, 2022 - frontiersin.org
The coronavirus disease 2019 (COVID-19) pandemic confined most of the population to
homes worldwide, and then, a lot of amyotrophic lateral sclerosis (ALS) centers moved to …
homes worldwide, and then, a lot of amyotrophic lateral sclerosis (ALS) centers moved to …
Validity and utility of the Center for Epidemiological Studies Depression Scale for detecting depression in family caregivers of persons with dementia
Abstract Background/Aims: The psychometric properties of Center for Epidemiological
Studies Depression Scale (CES-D) have never been substantively investigated in …
Studies Depression Scale (CES-D) have never been substantively investigated in …
The experiences of patients with amyotrophic lateral sclerosis of their decision‐making processes to invasive home mechanical ventilation—A qualitative study
T Thorborg, J Finderup, DS Winther… - Nursing …, 2023 - Wiley Online Library
Aim To explore and gain knowledge of the experiences and needs among patients with
amyotrophic lateral sclerosis (ALS) of their decision‐making processes whether to choose …
amyotrophic lateral sclerosis (ALS) of their decision‐making processes whether to choose …
Caregiving burden and depression in paid caregivers of hospitalized patients: a pilot study in China
YD Liang, YL Wang, Z Li, L He, Y Xu, Q Zhang… - BMC Public Health, 2018 - Springer
Background Caregiving burden and depression in family caregivers have been investigated,
but little is known about how they affect paid caregivers. The aim of this study was to …
but little is known about how they affect paid caregivers. The aim of this study was to …
Everyday life experiences of close relatives of people with amyotrophic lateral sclerosis receiving home mechanical ventilation—a qualitative study
D Winther, C Kirkegaard Lorenzen… - Journal of clinical …, 2020 - Wiley Online Library
Aims and objectives To explore everyday life experience of relatives of people with
amytrophic lateral sclerosis (ALS) living at home with mechanical ventilation and formal …
amytrophic lateral sclerosis (ALS) living at home with mechanical ventilation and formal …
Family caregiver suffering in caring for patients with amyotrophic lateral sclerosis in Korea
The purpose of this study was to describe the meaning of the suffering experience of Korean
ALS family caregivers. This is a descriptive phenomenological study that included ten …
ALS family caregivers. This is a descriptive phenomenological study that included ten …