Quality of life changes during the COVID-19 pandemic for caregivers of children with ADHD and/or ASD

KW Pecor, G Barbayannis, M Yang, J Johnson… - International journal of …, 2021 - mdpi.com
The COVID-19 pandemic has presented many challenges to caregivers of children. Families
with children with attention-deficit/hyperactivity disorder (ADHD) and/or autism spectrum …

Health in Down syndrome: creating a conceptual model

SL Santoro, MJ Cabrera, JPT Co… - Journal of …, 2023 - Wiley Online Library
Background Down syndrome (DS) has a unique medical and psychological profile that
could impact how health is defined on three dimensions: physical, social and mental well …

The Sensory Profiles, Eating Behaviors, and Quality of Life of Children with Autism Spectrum Disorder and Avoidant/Restrictive Food Intake Disorder

R Calisan Kinter, B Ozbaran, I Inal Kaleli, S Kose… - Psychiatric …, 2024 - Springer
Eating disorders frequently accompany autism spectrum disorder (ASD). One such novel
eating disorder is avoidant/restrictive food intake disorder (ARFID). This study compares the …

Predictors of individual quality of life in young people with Down syndrome.

L Morán, LE Gómez, G Balboni, A Monsalve… - Rehabilitation …, 2022 - psycnet.apa.org
Purpose/Objective: Although the concept of quality of life (QoL) has become a reference
framework for the provision of support and services to people with intellectual disability (ID) …

Health-related quality of life and family functioning of primary caregivers of children with down syndrome

A Rozensztrauch, K Wieczorek, I Twardak… - Frontiers in …, 2023 - frontiersin.org
Background Down Syndrome (DS; OMIM# 190685), known as trisomy 21, is one of the most
common genetic disorders in the human population and the commonest known cause of …

[HTML][HTML] Disorders of gut-brain interaction in a national cohort of children with Down syndrome

SL Ciciora, K Manickam, M Saps - … of neurogastroenterology and …, 2023 - ncbi.nlm.nih.gov
Methods This is a cross-sectional national survey study in which caregivers (n= 114) of
children with DS completed an online survey about their child's gastrointestinal symptoms …

[PDF][PDF] Effectiveness of Occupational Therapy on Improving Eating Independence in School Age Children With Down Syndrome at Kendari Autism Service Center …

S Wahyuni, A Purnamasari, FM Said… - Malaysian Journal of …, 2022 - medic.upm.edu.my
Introduction: Down syndrome is a genetic syndrome that causes sufferers to experience
delays in growth, disability, physical weakness and have a relatively low IQ. There are 8 …

A psychometric investigation of health‐related quality of life measures for paediatric neurodevelopment assessment: Reliability and concurrent validity of the PEDS …

N Perry, KA Boulton, A Hodge, N Ong… - Autism …, 2024 - Wiley Online Library
There is a need for tools that can provide a brief assessment of functioning for children with
neurodevelopmental conditions, including health‐related quality of life (HR‐QoL). This study …

Parental perspectives on the quality of life of children with Down syndrome

E Fucà, P Galassi, F Costanzo, S Vicari - Frontiers in Psychiatry, 2022 - frontiersin.org
Down Syndrome (DS) is the most common chromosome abnormality and the most frequent
cause of developmental delay/intellectual disabilities in children. Although the investigation …

Analyzing the Quality of Life in Individuals with Fragile X Syndrome in Relation to Sleep and Mental Health

A Minhas, K Whitlock, C Rosenfelt, J Shatto… - Journal of Autism and …, 2024 - Springer
The purpose of this paper was to examine the physical, emotional, social and school
functioning domains of quality of life of individuals with Fragile X Syndrome, in relation to …