Cognitive and behavioral manifestations in ALS: beyond motor system involvement

R Rusina, R Vandenberghe, R Bruffaerts - Diagnostics, 2021 - mdpi.com
Amyotrophic lateral sclerosis (ALS) has long been considered to be a purely motor disorder.
However, it has become apparent that many ALS patients develop cognitive and behavioral …

Are public health measures and individualised care compatible in the face of a pandemic? A national observational study of bereaved relatives' experiences during …

CR Mayland, R Hughes, S Lane… - Palliative …, 2021 - journals.sagepub.com
Background: COVID-19 public health restrictions have affected end-of-life care experiences
for dying patients and their families. Aim: To explore bereaved relatives' experiences of …

[HTML][HTML] Toward the identification of neurophysiological biomarkers for Alzheimer's disease in down syndrome: A potential role for cross-frequency phase-amplitude …

DB Victorino, J Faber, DJLL Pinheiro, FA Scorza… - Aging and …, 2023 - ncbi.nlm.nih.gov
Cross-frequency coupling (CFC) mechanisms play a central role in brain activity.
Pathophysiological mechanisms leading to many brain disorders, such as Alzheimer's …

Hospice Improves Care Quality For Older Adults With Dementia In Their Last Month Of Life: Study examines hospice care quality for older adults with dementia in their …

KL Harrison, I Cenzer, CK Ankuda, LJ Hunt… - Health …, 2022 - healthaffairs.org
The Medicare hospice benefit was originally designed around a cancer disease paradigm
but increasingly serves people living with dementia. At this time, almost half of all older …

[HTML][HTML] Live discharge from hospice for people living with dementia isn't “graduating”—It's getting expelled

LJ Hunt, KL Harrison - Journal of the American Geriatrics Society, 2021 - ncbi.nlm.nih.gov
People enrolling in hospice expect that they will be supported through the dying process,
ideally within the comfort of their own homes. This means that patients and caregivers …

A national study of disenrollment from hospice among people with dementia

LJ Hunt, S Gan, WJ Boscardin, K Yaffe… - Journal of the …, 2022 - Wiley Online Library
Background People with dementia (PWD) are at high risk for hospice disenrollment, yet little
is known about patterns of disenrollment among the growing number of hospice enrollees …

[HTML][HTML] Improving dementia care among family physicians: from stigma to evidence-informed knowledge

J Bacsu, FJ Mateen, S Johnson, MD Viger… - Canadian Geriatrics …, 2020 - ncbi.nlm.nih.gov
Dementia is a rapidly growing public health issue in Canada. Approximately 564,000
Canadians have dementia, and this number is estimated to rise to 937,000 by the year …

“I didn't sign up for this”: perspectives from persons living with dementia and care partners on challenges, supports, and opportunities to add geriatric neuropalliative …

KL Harrison, SB Garrett, M Halim… - Journal of …, 2022 - content.iospress.com
Background: In the United States, dementia specialty centers affiliated with centers of
excellence for research hold promise as locations to develop innovative, holistic care in care …

Potential determinants of unfavourable healthcare utilisation trajectories during the last year of life of people with incident Alzheimer Disease or Related Syndromes: a …

A Elyn, V Gardette, A Renoux, S Sourdet… - Age and …, 2022 - academic.oup.com
Background people approaching the end-of-life frequently face inappropriate care. With
Alzheimer Disease or Related Syndromes (ADRS), end-of-life is characterised by …

Palliative care for dementia: 2020 update

J Hashimie, SK Schultz… - Clinics in Geriatric …, 2020 - geriatric.theclinics.com
With the increase of the elderly population and increasing burden of dementia care, one
may consider the need for palliative and hospice services as an urgent public health priority …