In the endeavour of biobank research there is dispute concerning what type of consent and
which form of donor–biobank relationship meet high ethical standards. Up until now, a …

In biobanks, a broader model of consent is often used and justified by a range of different
strategies that make reference to the potential benefits brought by the research it will …

In this article we provide an in‐depth description of a new model of informed consent called
'meta consent'and consider its practical implementation. We explore justifications for …

Many biobanks were established as biorepositories for biomedical research, and a number
of biobanks were founded in the 1990s. The main aim of the biobank is to store and to …

A rapidly increasing capability for storing, linking, and analysing health data has led to new
opportunities for research. However, it also raises new ethical and regulatory concerns …

Biobanking has long generated a host of challenging ethical and legal issues, particularly in
relation to consent. A topic at the heart of current debates is the acceptability of the use of …

Background Health data holds great potential for improved treatments. Big data research
and machine learning models have been shown to hold great promise for improved …

Most bioethics studies have focused on capturing the views of patients and the general
public on research ethics issues related to informed consent for biobanking and only a …

Although a few jurisdictions around the world have legislated in response to the
phenomenon of biobanking, the far more common response has been policy led with …

Denmark is a society that has already moved towards Big Data and a Learning Health Care
System. Data from routine healthcare has been registered centrally for years, there is a …