Consensus guideline for the diagnosis and treatment of aromatic l-amino acid decarboxylase (AADC) deficiency

T Wassenberg, M Molero-Luis, K Jeltsch… - Orphanet journal of rare …, 2017 - Springer
Aromatic L-amino acid decarboxylase deficiency (AADCD) is a rare, autosomal recessive
neurometabolic disorder that leads to a severe combined deficiency of serotonin, dopamine …

Advances in managing transition to adulthood for adolescents with congenital heart disease: a practical approach to transition program design: a scientific statement …

AS John, JL Jackson, P Moons, K Uzark… - Journal of the …, 2022 - Am Heart Assoc
It is now expected that most individuals with congenital heart disease will survive to
adulthood, including those with complex heart conditions. Maintaining lifelong medical care …

The interface between child/adolescent and adult mental health services: results from a European 28-country survey

G Signorini, SP Singh, VB Marsanic… - European child & …, 2018 - Springer
Transition-related discontinuity of care is a major socioeconomic and societal challenge for
the EU. The current service configuration, with distinct Child and Adolescent Mental Health …

“If I had been given that information back then”: An interpretive description exploring the information needs of adults with cerebral palsy looking back on their transition …

M Freeman, D Stewart… - Child: care, health …, 2018 - Wiley Online Library
Background Young people with cerebral palsy (CP) and their families have identified lack of
information received during the transition to adulthood as a barrier to successful outcomes …

[HTML][HTML] How to meet the needs of youth with severe and enduring mental health problems: A qualitative study to barriers and facilitators in treatment

R De Soet, LA Nooteboom, CH Bansema… - Children and Youth …, 2023 - Elsevier
Youth with severe and enduring mental health problems (SEMHP) do not profit from regular
child and adolescent psychiatric (CAP) treatment. Their changing and complex problems …

[PDF][PDF] A systematic review of the literature on ethical aspects of transitional care between child-and adult-orientated health services

P Moli, L O'Hara, P Tah, C Street… - BMC Medical …, 2018 - researchrepository.ucd.ie
Background: Healthcare policy and academic literature have promoted improving the
transitional care of young people leaving child and adolescent mental health services …

A systematic review of the literature on ethical aspects of transitional care between child-and adult-orientated health services

M Paul, L O'hara, P Tah, C Street, A Maras… - BMC medical …, 2018 - Springer
Background Healthcare policy and academic literature have promoted improving the
transitional care of young people leaving child and adolescent mental health services …

[HTML][HTML] The evaluation of pediatric-adult transition programs: what place for human flourishing?

A Lanteigne, M Genest, E Racine - SSM-mental Health, 2021 - Elsevier
Adolescents with chronic health conditions transitioning from pediatric to adult healthcare
services experience a wide array of difficulties. In response, transition programs have been …

Psychological interventions for individuals with acquired brain injury, cerebral palsy, and spina bifida: a scoping review

M Jefferies, T Peart, L Perrier, A Lauzon… - Frontiers in …, 2022 - frontiersin.org
Background With current medical advancements, more adolescents with
neurodevelopmental disorders are transitioning from child-to adult-centred health care …

Une éthique minimale de l'éducation à l'autonomie en santé de la population adolescente vivant avec une maladie chronique

M Morsa - Éthique en éducation et en formation, 2021 - erudit.org
Dans le domaine médical, l'éthique est généralement envisagée à travers le prisme du soin,
mais elle l'est plus rarement à travers celui de l'éducation. Or la prévalence croissante des …